The film demonstrates his creativity, curiosity, and self-understanding, all of which aid him in dealing with and healing the many adversities he experienced due to his diagnosis. The video begins with work from 1982; the portion with Ed was recorded in 1999. Paula Howie, HLM, introduces the film in 2020 and adds commentary about what knowing Ed for over 30 years meant to her.
Ed left the hospital in 1983 and during the late 1990s he suffered from iatrogenic kidney failure necessitating several operations and hospitalizations. Paula and Ed (and sometimes his first wife) continued their work until Paula’s retirement in 2002. After that, they were in touch by phone, letters, and emails.
In 2015, Paula and Ed met in Hershey, PA where Ed gave her much of his early artwork. They discussed how he did not want to spend his remaining life undergoing 5 hours of dialysis several days a week. It was so like Ed to choose how he wished to live and to die. After this meeting, he emailed Paula saying that he was leaving to live in another country. He had met someone and was planning to marry again. Paula did not hear from him for some time until 2016 when he called to let her know his condition was critical-he had returned to the United States and was in urgent need of a kidney. He died shortly thereafter, leaving a masterful body of work and many who cared for him.
Commentary by Paula Howie, MA, ATR-BC, HLM, LPC
