An Existential-Spiritual Journey During COVID-19

A Place of Uncertainty

As we approach the second anniversary of the first detection of COVID-19, we are no longer in the acute stages of the pandemic. However, neither do we find ourselves squarely in a post-pandemic world, as new variants continue to evolve and spread rapidly, sparking fear and halting daily life. A heightened sense of self-doubt, vulnerability, and anxiety can occur in this “limbo-like” state, particularly for clients experiencing life-threatening medical conditions. Feeling threatened for prolonged periods may increase both the client’s and therapist’s need for certainty and diminish our ability to tolerate ambiguity. In the case of COVID-19, when safety and normalcy are in question, life’s uncertainties may be harder to endure.

Existential approaches are particularly well-suited for addressing concerns provoked by the COVID-19 pandemic such as encountering the fragility of life and the unpredictable nature of events, as well as uncertainty about when (or if) the pandemic will end. For Yalom, the aim of psychotherapy is to help clients fully experience and accept the existential anxieties associated with the “givens of existence,” including death, isolation, freedom, and meaninglessness. As a result of facing death, individuals may experience a sense of urgency to revise life priorities that can lead to improved meaning.

Existential therapists generally suggest that anxiety and existential guilt need to be experienced in an open and honest manner and, when directly encountered, can become a source of vitality, creativity, and purpose. Rollo May and Paul Tillich believed that courage and determination are fostered when anxiety, adversity, and life’s dilemmas are faced. In other words, when we accept our limitations, we also commit ourselves to living fully.

Victor Frankl’s recent series of posthumously published papers does this by shifting emphasis away from the question of “What can one expect from life?” to “What does life expect from us?” Thus, he suggests that it is life itself that asks questions about meaning. While we may feel challenged and forced to face discomfort when we ask ourselves what life expects from us, French philosopher Gabriel Marcel posited that such pain and suffering offer the only pathway to real insight and spiritual growth. Perhaps through these challenging questions that place uncertainty, obstacles, and suffering before us, we discover our meaning and purpose.

Clinical Vignette

The clinical vignette presented below highlights the challenges of how a therapist-client dyad worked through their mutual feelings of “not knowing” and uncertainty by processing their own existential anxieties and fears. A series of dreams of the client and therapist, as well as the use of creativity as a spiritual intervention, are described to demonstrate the complexity, practicality, and depth of the existential approach. In particular, the vignette highlights how dream interpretation can be used in enhancing problem-solving and conflict resolution, mastering trauma, exploring unknown possibilities and paths not chosen in life, wish fulfillment, compensation, communication with the therapist, and integration of self.

Initial Phase: An Exploration of Death and Social Anxiety in the Context of COVID-19

Steven is a 63-year-old man who presented for individual psychotherapy approximately six months after the resection of a non-malignant brain tumor. He experienced one generalized tonic-clonic seizure immediately after his tumor resection, which had a significant impact on his social and emotional functioning.

In terms of constitution, Steven had always been shy and sensitive. He had maintained a group of close friends since high school. Although he never married, he had had two long-term relationships since graduating from college. At the time of his surgery, he had been retired for two years from his career as a special education teacher and had reportedly been adjusting well to his life transition. Steven valued his level of independence, intellectual curiosity, and work ethic. His numerous interests included photography, hiking, reading history, and political activism. After the onset of his neurological condition, however, he became quite withdrawn and fearful about leaving his apartment. Although his seizures were well controlled with medication, the onset of his condition and the implied risks amplified his social anxieties and fear of death. Whenever he did leave his apartment, he felt self-conscious about his word-finding difficulty and occasional stutter, which exacerbated his fear of being ridiculed and shamed. After experiencing months of social isolation and increasing depression, he reached out for therapy at the encouragement of his physician and close friends. He hoped to regain self-confidence, be able to connect with old friends, and resume his recreational interests.

Steven’s comments about his own mortality were interspersed throughout the early sessions and were delivered in an intellectualized and affectively neutral manner. He recalled his experience of waking up from surgery and having a seizure in a vivid but emotionally detached manner, leaving me feeling highly anxious. I felt that he would have been frightened and overwhelmed if this had happened to him. These sessions felt more as if Steven was reporting about his life, rather than experiencing his life.

Given the news of the spread of COVID-19 in New York City during his third month of therapy, Steven agreed to continue sessions via telehealth. On top of the feelings of death and social anxiety and uncertainty secondary to his brain tumor and seizures, he felt the virus was exacerbating his lack of control over his life. Steven had a mindset that his medical condition and COVID were unsolvable problems leaving him trapped in his apartment with no escape.

In the first few telehealth sessions, there was a noticeable shift in Steven’s mood, focus, and communication style. Where previously he would speak at length about his negative interactions with the public in the local supermarket or in the elevator of his building in a detached fashion, his conversation in the context of the pandemic became more emotionally laden, his mood palpably more depressed, and his focus turned inward. While he had already worked through diminished control over his health and restrictions imposed by his physician and medications, COVID-19 surfaced additional fears of brain cancer and not being able to get help if he were to have another seizure.

The threat of COVID-19 increased the reality of his mortality due to his medical condition, and he could no longer speak about it indifferently. Instead, this emotional intensity filled the content of his thoughts and treatment sessions such that he grew more removed from the people and activities that had filled his time with meaning, purpose, and pleasure before his brain tumor. His increased level of avoidance, which had started after his surgery and was exacerbated by COVID-19, further impacted his sense of identity and agency in the world. For instance, Steven expressed that he was afraid of dying alone and nobody finding him. He did not have any religious affiliation but felt that he was a spiritual person when walking in nature or helping others who were vulnerable.

In the second month of treatment, Steven had reported a dream where he “was traversing over a deep canyon. As [he] cautiously walked across a wide rope with railings, it swayed back and forth. [He] saw a dark, shiny mountain across the cavern, but the rope was not attached to the mountain. [He] was unable to look down and felt paralyzed to take an additional step forward. [He] tried to scream out for help, but no words came out.” He woke up sweating and frightened. In session, Steven was asked to tell the dream in the present tense to promote a sense of presence and agency. When asked about the predominant feelings he had in the dream, Steven responded that he was overwhelmed with the anxiety of and fear of falling into the cavern that had no bottom. When asked how he would want the dream to end, he responded by wanting the rope to continue to the mountain so that he could feel safe with his feet firmly on the ground.

During the next few months of therapy, questions that had been previously effective with helping other clients with medical conditions and high levels of anxiety to gain a sense of meaning or agency (e.g., “What are some things that you can control now?” “What are your feelings of fear and anxiety trying to teach you?” and “What do you feel most passionate about in your life?”) were dismissed as unhelpful. Steven emphatically stated that he needed definitive answers to the questions that preoccupied his entire day, such as “Will my tumor grow back and become cancerous?” “If I exert myself through exercise or go to social events with my friends, will I get COVID or a seizure and die?” and “Is the government deliberately giving us misinformation regarding COVID-19?” I felt increasingly anxious and was unable to give a clear answer to any of these questions. As Steven’s therapist, my own experience of “not knowing” was overwhelming, since we were both experiencing our own feelings of anxiety, fear, and uncertainty about getting or spreading the virus. Steven tended to repetitively ask questions with no clear answers and would spend hours searching through social media sites for elucidation. Over time, he noted that the therapy was not helpful, even indicating that he felt more frustrated and withdrawn in both his sessions and his personal life.

Middle Phase: A Shift in the Therapist’s Approach

After consulting with several colleagues, I decided to focus on active listening, patience, tolerating silence, and providing space for Steven to find the words for his feelings. The decision to shift my therapeutic style with Steven was motivated in part by my experience of feeling alone in the room and that my words were not being heard; any interpretations or interventions offered were readily dismissed, as though batted away with a tennis racket. My reactions were further complicated by the difficulty of picking up nonverbal cues on the Zoom telecommunication platform. Ultimately, my countertransference reactions yielded a deeper appreciation for Steven’s emotional life, including his profound sense of isolation, powerlessness, and feeling invisible in the world. I was then able to provide Steven with titrated reflections of this loneliness and helplessness, contextualized within the uncertainty of the pandemic and his medical condition.

Shortly after I shared this particular self-disclosure and processed his reactions, I experienced a dream where “I was dragging a dead body of a man in a trash bag down a busy avenue in Manhattan. The bag was heavy, and it took a great effort to pull the bag toward Macy’s on 34th Street. I struggled to pull the bag toward the holiday window at Macy’s when the dream ended.” I understood the dream to be an indication that I was trying too hard and doing too much of the therapeutic work, and that Steven needed to take more responsibility and ownership of the course of the treatment. I also wondered about the meaning of the Macy’s holiday window scenes of families celebrating together, children playing, and religious scenes, and whether some creativity or spirituality needed to be part of the therapy in order to bring Steven to live more fully again.

This internal shift in my perspective led to a new phase in treatment where Steven was able to gradually mourn his loss of identity, direction, and purpose in life related to his medical condition and COVID-19. We began to explore his regrets in life. Steven was able to recall that he had always wanted to be a professional photographer but had not had the confidence to pursue this wish. He had always wanted to have children but felt that his career in special education partially fulfilled this desire. Shortly after, Steven recalled a dream where “[he] was in his parent’s country house in [his] room looking at a wall of his photographs from one of [his] high school classes. [He] noticed the subtleties of lightness and darkness in the scenes of Manhattan and started to experience a sense of pride and accomplishment. At that moment, [he] overheard [his] parents and other relatives laughing in another room, and [he] felt a sense of humiliation and shame that they were making fun of [his] photographs.” He awoke feeling a sense of hope about his creative abilities and a sense that he now had the time to act on it. He also felt that he did not trust his desires when he was younger and was more concerned about what others would say about his artistic ability. When asked of his associations to the dream, Steven mentioned that the night before he had watched a film of someone who spent years walking every street in the five boroughs of New York. Steven regretfully said that he wished he had the courage and confidence to pursue his deeply-buried artistic dreams.

Working Though Phase: The Use of Creativity as a Spiritual Intervention

After a period of medical improvement, including being seizure-free, Steven started going out of his apartment a few days a week to take black and white photographs in Central Park. During the early morning hours, he experienced a sense of awe, wonder, and adventure in not knowing where his walks would lead in the park. He took black and white pictures of statues, lights filtering through leaves on the trees, animals resting in the zoo, and a formation of geese flying over a pond. Steven experienced a greater sense of freedom, calm, and centeredness during these occasions. His rediscovered artistic passions, which resulted in increased flexibility and confidence in taking risks in other aspects of his life, including contacting friends and colleagues with whom he had lost contact. These photographs activated something on a deeper level in Steven and enabled sharing these photographs with his older friends. He initiated contact with his former school and volunteered to teach photography in a small group setting, which provided a sense of purpose and direction in life.

As Steven’s level of anxiety and medical symptoms improved, he was able to shift his focus from internal preoccupations with not knowing what his future would be like to existential concepts of meaning, values, and priorities. He thought more about his future, making peace with external things that he did not have control over. Steven shifted his position from the passenger seat to taking a more active approach in life. He became curious about how he wanted to lead his life and pursue his social and recreational interests. I facilitated this process by open-ended questions, such as “What has sustained you in dealing with your medical issues?” “Where do you think you found your strength?” and “If you were to imagine your life one year from now, looking back on how you dealt with your medical recovery, what would you think about how you handled things?” In addition, I asked, “If you had not had your neurological condition, would you be dealing with the pandemic any differently (and vice versa)?”

Steven realized that when he began treatment he had been feeling sorry for himself and angry at the unfairness and injustice of having a medical condition after being a good person who devoted his life to helping others. He realized that he was fearful of taking risks and failing, and that he had more to give to others despite his limitations. Steven acknowledged the importance of his friendships and of continuing to develop his personal values and traits. He gradually came to realize his own power to choose how he wanted to view and respond to life’s major challenges. Furthermore, he started to become aware of ways in which his medical condition had made him stronger, including being able to face his mortality and tolerating not knowing and uncertainty. He was eventually able to acknowledge that his courage, determination, and creativity enabled him to cope with his multiple challenges and that he had more to live for.

Concluding Thoughts

Existential approaches are uniquely suited to address prominent themes in the COVID-19 pandemic, including anxiety surrounding death, uncertainty, isolation, and vulnerability. Existential therapy provides an important opportunity for clients and their therapists together to face these challenges and discover meaning throughout. Through the process, they are able to live life with greater intention, purpose, self-reflection, and presence, to accept and learn from feelings of not knowing, uncertainty, and anxiety, and to value the benefits of choosing one’s attitude toward adversity.

This case vignette highlights the benefits for both the client and therapist in experiencing, accepting, and learning from feelings of uncertainty. Asking open-ended questions about Steven’s dreams, values, attitudes, and meaning in life enabled him to be more curious and flexible. Incorporating creativity as a spiritual intervention provided an opportunity for a heightened degree of engagement, self-reflection, intensity, hope, and passion. In a parallel manner, my therapeutic shift to slowing down the pace and focusing on the process, tolerating moments of silence, utilizing countertransference reactions, and reflecting on his and my own dreams enabled me to let go of the need to appear as an expert with all of the answers and be more of a “fellow traveler.”

There are moments when clients need their therapists to feel the depths of their powerlessness, loss, vulnerability, and despair in order to find and describe their feelings and to feel understood and emotionally held. There are healing moments when the most important gift that we bring to another person is the silence within us, the kind that is a source of peace, acceptance, and allows the transitional space to be.

A Matter of Death and Life

Excerpted from A Matter of Death and Life by Irvin D. Yalom and Marilyn Yalom, published by Stanford University Press, ©2021 by Irvin D. Yalom and Marilyn Yalom. All Rights Reserved.

Numbness, 50 Days After

Numbness persists. My children visit. We take walks in the neighborhood, cook together, play chess, and watch movies on TV. Yet I remain numb. I feel uninvolved in the chess games with my sons. Winning or losing has lost significance.

Yesterday evening there was a neighborhood poker game, and my son Reid and I both played. It was the first time I’ve ever played together with one of my sons in a game of adults. I’ve always loved poker but at this game, at this time, I could not shuck the numbness. Sounds like depression, I know, but still I took pleasure in seeing Reid’s happiness about winning thirty dollars. As I walked back to my home, I imagined how good it would have felt to arrive home, be greeted by Marilyn, and tell her about our son’s winning night at poker.

The following night I try an experiment and place the portrait of Marilyn in plain view in the room while my son, his wife, and I watch a movie on TV. But, after a few minutes, I feel so much tightness in my chest that I again put Marilyn’s portrait out of sight. The numbness persists as the film proceeds. After about a half hour, I realize that Marilyn and I had seen this movie several months before. I lose interest in seeing it again but remembering that Marilyn had enjoyed it a great deal, I honor the bizarre notion that I owe it to her to watch the entire film.

“I notice that the numbness recedes the first few hours of the day when I am immersed in writing this book and also when I work as a therapist”. Today, a woman in her late twenties enters my office for a consultation. She presents her dilemma. “I’m in love with two men, my husband and another man I’ve been involved with for the last year. I don’t know which is the real love. When I’m with one of them, I feel that he’s my real love. And then the next day or so I feel the same way about the other man. It’s as though I want someone to tell me which one is the real love.”

She discusses her dilemma at length. Midway through the session, she notes the time and mentions that she had seen my wife’s obituary. She thanks me for being willing to see her at this difficult time. “I worry” she says, “about burdening you with my issues when you’re suffering such a huge loss.”

“Thank you for those words,” I reply, “but some time has gone by, and I find that it helps me if I’m engaged in helping others. And also, there are times when issues arising from my grief enable me to help others.”

“How does that work?” she asks. “Are you thinking of something that may be helpful to me?”

“I’m not clear about that. Let me just ramble for a minute. Let’s see . . . I know that getting involved in your life in this session temporarily diverts me from my own. I’m thinking, too, of your comment that you don’t know your real self and that you cannot know which of these two men the real you really wants. I keep thinking about your use of real. I feel this may be tangential, but I’ll just trust my instincts and tell you what our discussion stirs up in me.

“For a very long time I’ve felt that an event often felt ‘real’ only after I shared it with my wife. But now, weeks after my wife’s death, I have this very strange experience of something happening and my feeling I must tell my wife about this. It’s as though things don’t become ‘real’ until my wife knows about them. And, of course, that is entirely irrational because my wife no longer exists. I don’t know how to put this in a way that will be helpful but here it is: I, and only I, have to take full responsibility for determining reality. Tell me, does this have any meaning for you?”

She seems deep in thought and then looks up and says, “That does speak to me. You’re right if you’re implying that I cannot trust my sense of reality and that I want others—perhaps one of my two men, perhaps you—to identify reality. My husband is weak and always defers to my observations, to my sense of reality. And the other man is stronger, very successful in business, very sure of himself, and I feel safer and more protected and trust his sense of reality. Yet I also know that he’s a long-term addict who is now in AA and has now been sober for only a few weeks. I think the truth is that I mustn’t trust either of them to define reality for me. Your words make me realize that it’s my job to define reality—my job and my responsibility.”

Toward the end of our hour together, I suggest that she is not ready to make a decision and should tackle this in depth in continued therapy. I give her the names of two excellent therapists and ask that she email me a few weeks from now to let me know how she is doing. She is deeply touched by my sharing so much with her and says that this hour has been so meaningful that she didn’t want to leave.

Introducing Grief: How My Clients and I Have Embraced the Exploration of Loss

An Unexpected Loss

A few years ago, while working as a clinical social worker at a community mental health center, I was asked to start a grief group at the clinic. My supervisor gave me a copy of Shneidman’s Death: Current Perspectives, which I took notes on with reverence and intention. I learned about the concepts of primary and secondary losses. I considered the sociocultural construction of loss and its many manifestations. I even began to think about my own losses, and the many ways that I might be trying to lend voice to them, both in the therapy room and through the very identity I had chosen as a helping professional.

A few weeks after I began my research on grief, I experienced a sudden and unexpected loss. Just before meeting with a supervisor, I received a voicemail message from the neighbor of Chester, one of my closest friends. “Stephen, can you call me? I noticed that Chester hasn’t picked up his newspapers from the front step in a few days. I know you have a key, so I thought you may want to go check on him.” My dear friend Chester was an older man who lived alone and was a voracious reader. And “to anyone who knew Chester well, a report of piled-up newspapers was understandably unsettling”. So I left work early, raced home on my bicycle, cut through the little one-way streets in our neighborhood, and unlocked his front door. Fearing the worst, I walked into the blaring of the local NPR radio station. Odd. I climbed the creaky staircase and surveyed the hallway, my heart sinking more deeply as I entered each empty room. I found my dear friend in his bed, dead, most likely due to complications from diabetes and poor diet. In the days that followed, I helped to plan his funeral, I wrote and delivered his eulogy, and two days later, I boarded an airplane with my love, Rebecca, for a long-awaited two-week trip to Amsterdam.

I was exhausted during the trip, still caught off guard by, and unable to reckon with, the loss of Chester. In light of the impact of his death, I realized that I would not be able to go forward with the plan for the grief group at the clinic. My supervisor was supportive and understanding. And although I never started the group, the coincidence of exploring grief professionally while experiencing it personally was formative for me. And it was this uncanny parallel process that solidified my clinical interest in grief and loss. In recent times, still relatively early in my clinical career, I have devoted myself more fully to developing my own perspectives on the use of grief and loss in the therapy room. From what I have seen so far, just the mere introduction of the words “grief” and “loss” can serve as a catalyst for client self-examination and positive therapeutic change.

Grief is in the Room

Consider the following tales of loss. Elizabeth, a woman in her mid-thirties, has an obsessional fear that her beloved dog, Daisy, will die, and questions whether she could justify continuing to live following the dog’s death. Richard, a man in his late twenties, harbors the shame of a disjointed and unfulfilling collegiate career that was lost to debilitating depression. He develops a subsequent, chronic fear of mis-stepping in both his professional path and in life in general. Finally, Melissa, also in her late twenties, enjoys a budding acting career; however, the exhilaration that accompanies this new journey serves as a constant reminder of her early years sacrificed to the oppressive agenda of the religious cult in which she was raised. These are the experiences of some of my clients, who have collectively spoken to the issues of loss and grief in their various forms. As I began working with each of them, I soon recognized how the stress and pain of loss was woven into the fabric of their daily lives. Over time, I came to see these stories as reflective of significant, and sometimes traumatic, grief.

These clients had one thing in common—none of them was seeking grief counseling. Each client sought therapy for a particular problem, such as depression, OCD, or general anxiety, yet narratives of grief and loss gradually emerged as they shared seemingly peripheral issues or stories. I began to see many of my clients’ experiences as forms of what has often been called complicated grief.

Complicated grief, also sometimes called persistent grief, is described in the DSM-5 diagnosis of complex persistent bereavement disorder (CPBD). This type of grief is characterized by chronic rumination, persistent challenges to accepting the loss one has experienced, and sometimes difficulty trusting others following the loss. I would like to note that before the DSM-5 was published, members of its advisory task force worked to address issues related to conceptualizing persistent grief as part of a disordered condition. The resulting diagnosis of CPBD was eventually placed in the chapter for diagnoses requiring further study. In keeping with the ambiguity and potential pitfalls related to the assessment and labeling of grief, I try to remain flexible when talking about grief as “complicated.” I also try to practice active curiosity by examining my clients’ personal cultural beliefs about grief and loss.

Often, when a client of mine identifies with the experience of complicated grief, they endorse persistent feelings of loss without a corresponding process of connection to life beyond the loss. Moreover, they often express a chronic doubt in the possibility of meaningful discovery during examination of their grief. Complicated grief often drives a person to fixate on certain associations of loss and to avoid other associations, which can make it difficult for one to do the kind of thoughtful narrative work inherent in the grief process. Elizabeth, for instance, spent so much time fixating on her dog Daisy’s potential medical issues and feeling guilty that she was often unable to connect and be in the moment when they were together. Such complicated grief may leave a person feeling anxious, empty, or hopeless about various aspects of life. This, in turn, often leads to existential blockages, because the grief-stricken person feels unable to engage with the meaning of life in one way or another. This makes me think of Richard, who felt so preoccupied with the idea of approaching life “the right way” that he often found his relationship with his values and his deeper motivations in life to be elusive. Exploring them in session often felt pointless and painful.

Identifying and understanding stories of loss and grief have been difficult processes for me, as loss often carries with it complex ambiguities with respect to the size and duration of its consequences. A client might think the following: “Was something, in fact, lost?” Elizabeth had difficulty understanding how she could be constantly mourning her dog Daisy while she was still alive. A client may also ask if they are destined to never regain or recover from that which was lost, as did Richard following his traumatic college experience. Finally, one may wonder, “What is the right way to feel about my loss?” Melissa often asked how she should feel about the loss of her religion and the accompanying metaphysical disorientation she experienced. The above questions can feel especially complicated when we consider clients’ attachments to abstract things such as identity, whose definitions can be less convenient to identify or communicate in therapy than, say, the death of a loved one. Regardless of any challenges, I have tried to see loss and grief in my clients’ stories and to talk about the impact of losses with my clients. In doing so, I’ve found that grief work is a deeply meaningful, effective, and surprisingly welcome therapeutic endeavor.

Recognizing My Grief Blindspot

Because the characteristics of complicated grief may coincide with the symptoms of OCD, generalized anxiety, PTSD, and major depression, at times I have initially failed to identify and appreciate grief as an experience in its own right. But the overlap between diagnostic features is not the only reason I have been slow on the draw. In 2011, I took my first mental health job as a residential counselor in a behavioral, CBT-focused residential unit for people with OCD. Treatment on the highly respected unit focused on the “here and now” of clients’ experiences, and I learned to deemphasize the narratives of grief and loss in treating patients. I was trained, tacitly, to see the nature of patients’ activating triggers as relatively unimportant, and I remained incurious about the source or meaning of patients’ obsessions and compulsions, including any possible connection to grief or loss. After a year or so, and after many in-depth discussions with patients, I became bothered by the lack of attention paid to the grief that many of the patients seemed to carry. I was frustrated with the fact that our treatment, which was evidence-based and internationally known, seemed to be limited to a focus on concrete OCD triggers and behavioral responses.

A colleague at the OCD treatment program once said, “”If we only treated OCD, this would be the easiest job in the world.”” His point was that our patients often came in the door with many co-occurring forms of distress and pathology, which made it difficult to concentrate optimally on the OCD symptoms. But the reality was that we did only treat the OCD. Meanwhile, many patients, in my observation, carried complex grief stories related to their illnesses. These stories, when expressed during private check-ins, or after dinners during quiet time, often reflected experiences of stigma and alienation, as well as deep feelings of inadequacy. Patients’ personal narratives tended to give voice to an experience so familiar to those with both OCD and chronic grief—the feeling of being stuck. For many patients, the longstanding grief, the stuck feeling, reflected a perceived lack of momentum in their lives, along with understandable challenges in accepting the way things had turned out for them. Their narratives were often anchored by the belief that they were inherently dysfunctional. And whether in treatment or at home, the patients I worked with often found little opportunity to confront their own grief narratives and to make meaning of the upsetting losses they experienced throughout their lives.

Grief and the Illuminating Power of Loss

Since I have begun working through a grief lens, I’ve absorbed two valuable pieces of wisdom: (1) a single event of loss almost always contains multiple losses, and (2) a current loss often triggers past losses. Recently, a client in her 40s spoke frankly to me about “feeling like a loser” when reflecting on her decision, ten years ago, to say no to a wedding proposal of a friend. She maintained a close connection with that friend, and one day, while in the midst of a severe depression, that friend ended his life. After I spoke frankly with my client about the idea of grief and the significance of loss and explored these concepts with her, she led us to discussions of more internal, personal losses. In addition to grieving the death of her friend, she was left struggling with the notion that the past 10 years of her life had been lost. “Would I have children now?” she asked. “Would I have had beautiful memories associated with a partnership?” Her feelings of loss were further stoked by the presence of a power struggle and of a cultural conflict: “What if I had stood up to my parents, who wanted me to marry an Indian man?” she once asked me.

My client then began to mourn what was to come: the future life she feels she will never have. “I believe, Stephen, that I have lost the best years of my life,” she said to me during one session. Very quickly, our sessions broadened from talking about a primary loss (loss of her relationship to her friend), to some secondary losses (loss of identity as a married person, as a parent to children, as a person of culturally normative social development/achievement). While my client struggles with depression and some obsessional tendencies, her stories of grief and loss led us most reliably to some of the more meaningful reparative work in her life, and also appeared to increase her investment in the therapy. She attended sessions more regularly, appeared more thoughtful and creative in her reflections, and gave me more feedback. I’ve noticed an increase in therapeutic engagement with other clients who embraced grief and loss as well. Taken together, grief work has demonstrated to me its wonderful ability to help clients examine a broad spectrum of relationships and perspectives ranging from functional to existential.

Another interesting example of how one grief exposes another involves the case of Elizabeth. Initially, she shared chronic health anxiety concerning her dog, Daisy. Her anxiety manifested as obsessions related to Daisy’s getting sick and dying and compulsions aimed at assessing her health. It wasn’t until later on, after I had introduced the concept of grief, that she decided to focus on something that had previously been peripheral to our work: the story of her birth. Elizabeth had shared with me, a year prior, that she had a twin brother who died in childbirth. Later on, when Daisy experienced more serious health complications, Elizabeth explored the connection between her mother’s guilt over her brother’s death and her own subsequent lifelong attachment to health anxiety. More specifically, she began exploring her preoccupation with the health and welfare of her dog, whose relationship to her was getting crowded out every day by her obsessions and fears. An important question emerged in one session. It was a question that my client had written on a white board in her apartment and looked at periodically during the day: How can I survive after my dog dies? The question, she said, was very activating, and ultimately cut to the core of her grief. At this core seemed to be a strong element of survivor’s guilt that was a part of her birth story. Directly addressing the recurring theme of survivor’s guilt helped to disrupt the obsessions that had taken the place of real grief processing and meaning making. Elizabeth began to report a more authentic, self-compassionate exploration of the events of her birth as well as of her relationship with her family and with her beloved dog.

Final Thoughts on Grief, Love, and Loss

Far from confining them to the examination of a single relationship, grief work has allowed my clients to journey beyond the scope of the lost relationships in order to circle back to the self. In excavating the internal devastation, like old wreckage, this work has helped my clients examine their histories, their early attachments, their developmental phases, their defenses, and their cultural backgrounds. Thinking about loss has also made me a more sensitive therapist. I am more aware of my power to trigger feelings of loss in therapy. Once, when a client notified me of a sudden insurance change, I wrote them back, stating frankly that we might not be able to continue working together. In the next session, she expressed feelings of rejection, and questioned whether I cared that our relationship might end. When I reminded a client that I would soon be leaving the health center where we had worked together for two years, he became very upset, accusing me of being just another provider who was destined to abandon him. His reaction came after a couple of months of his knowing I was leaving, and of seemingly being well-adjusted to the idea.

Sometimes I feel the loss as well. Recently, after raising my session fee, I received feedback from a client. In addition to worrying if she could afford to continue seeing me, she reported being upset by a change in her perception of me as an egalitarian-minded therapist. “I thought you were for the people, Stephen,” she said. Ouch. That really threw me off. I rode my bicycle home after that session, upset that maybe she was right, that maybe I had in fact lost a piece of myself.

I want to end by touching on an idea that can at once be liberating and invalidating: that not all losses cause grief, and that even losses that cause tremendous grief can also provide relief, instill curiosity, and provide new opportunities for growth and connection. At times, I’ve worried that this sentiment reflects some of the toxic positivity and anti-grief attitudes that I see in modern day American, consumerist culture, and sometimes in evidence based, solution focused modalities. But the truth is, we have a responsibility to explore the many associations our clients, and we ourselves, have with loss.

When my friend Chester died, I felt I had lost a significant older male role model. But at the same time, his death brought about this sudden and unexpected sense of growth and preparedness that I hadn’t experienced before; it was a coming of age moment, albeit at 30 years old, that had me thinking of myself as more of an adult, maybe even more of a man. And when my client accused me of being money hungry, it was an opportunity to examine my relationship with the ethics and philosophy of value exchange in therapy. It was also an opportunity to question my attachment to an identity I sometimes feel obligated to occupy—that of the selfless helper. “What if I’m abandoning my beliefs, or acting selfishly? What if I’ve lost myself?” I asked.

In the end, I am better for asking these questions, as they have brought me to a more engaged and fulfilling, albeit uncertain, place in my practice. And I think all of the experiences outlined above, those of my clients and of my own, lead to an important reflection: that maybe it’s possible for loss to lead to connection, or reconnection, with something of value. Reflecting on grief and loss may bring us back to a purpose, an identity, or even a community. And maybe the experiences of loss and the grief we hold can help bring about a reintegration within ourselves. After all, it is often these new, and renewed, relationships with the self that we have been searching for all along.

My First Private Patient

The following is an excerpt taken from The Fear of Doing Nothing: Notes of a Young Therapist by Valery Hazanov, published by Sphinx, an imprint of Aeon Books © 2019 and reprinted with permission of the publisher.

My First Private Patient

Climbing up the stairs from the subway stop on 13th Street, I reached for my phone and saw a text from a former classmate. It was August 2015; I had just received my license.

“Val, it’s been ages!” she wrote. “How are you? Did you start your practice already? Someone asked me for a referral: a professor from Moscow who’s looking for a Russian-speaking therapist in the city. I don’t know him, but his son works with Daniel and sounds really nice … Would you be interested? Let me know and we need to get drinks!”

“The man, I learned from his son, was a microbiology researcher in his seventies who came to New York for an experimental treatment of cancer”, with which he had been diagnosed a few months earlier.

“We would like you to work with him on themes of positive thinking and optimism,” the son told me over the phone. “We understand that it might be crucial for the success of his treatment.”

I did not have a practice, but quickly (Israeli style) arranged something for the following Friday: John, the leader of the men’s group, lent me his place near Central Park. It was a good-looking room with many ancient artefacts, an enormous sofa, and a window that looked onto a leafy courtyard with two benches.

I came thirty minutes early and as I was waiting for Mikhail Alekseyevich to arrive, I photographed the room with my phone camera and sent it to my mom and a few friends in Israel.

“Look at you, Doctor!”

“Beautiful, Valery …”

“Can we come for a session?”

I was standing by the window, trying to imagine who I would meet, reflecting on the irony of my first private patient being from Moscow, thinking about the type of Russian he might be – in what sociological box from my past would he fit …

A buzz at the door. We begin.

***

“Here?” an older woman asked nervously as she was wheeling in Mikhail, who seemed disinterested, slumped in his wheelchair, looking very thin, turning his gaze to the window – away from me.

“Hi, I’m Valera. Nice to meet you.” I shook their hands.

They introduced themselves.

“Welcome to New York, Mikhail Alekseyevich,” I said after his wife had left the room.

“Puzzling city …” he replied in a pensive voice.

“How so?”

“I don’t know. Who are you? I didn’t quite comprehend from my son. He keeps taking me to all these appointments. Are you a doctor?”

“I’m a psychologist.”

“A psychologist? He didn't mention…I’m surprised he brought me here, I never understood what psychologists do.”

“Me neither.”

““You tell people that everything will be alright?””

I laughed. “Something like that.”

“How old are you?”

“Thirty-three.”

“Young, young … And where are your parents? In Moscow? Here?”

“My mom lives in Colorado and my dad is in Israel, where I grew up.”

“My God. You have no one here. How do you manage?”

“I run a lot.”

“I see. That’s good. So tell me, psychology, is it even scientific?”

“I don’t think it’s scientific.”

“You see, Valery, my cousin’s daughter in Moscow is a psychologist,” he said with a grimace. “She tried to explain many times … She’s a singer, she does yoga, she lights candles that smell nice. She told me that there are three ways to be happy, but I can’t remember them … What’s a psychologist then? What exactly do you do?”

“Have you read The Grapes of Wrath?”

“Yes. Many years ago.”

“Remember the guilt-ridden uncle who’s dying to talk to someone and ends up drinking instead?”

“Vaguely.”

“The family needs to keep moving, if you remember. There’s no time for what he needs. He keeps bugging them, wants to tell somebody, anybody, what happened to his wife and how it was all his fault. He’s breaking down, he’s feeling ashamed. He’s lonely and misunderstood. I talk to people like him.”

“And?”

“Sometimes it helps. Sometimes it doesn’t do anything.”

“What will it do to me?”

“I’m not sure yet.”

““How will you ‘cure’ me? Tell me to forget that I have cancer and look at the positive things in life?””

Checkmate against the psychologist by the Russian researcher, by generations of people who did it all by themselves, who withstood Stalin and the World War and the Gulag and never complained and kept on going. No need for therapists, thank you very much, we’ll manage by ourselves. But tell me, psychologist, what is your plan? Will you tell me that everything will be fine and I’ll whine a little and feel sorry for myself?

“I don’t think I’ll do that. It sounds like a terrible idea,” I said.

“What then?”

“You tell me: maybe you want to fight, maybe you want to let go.”

“Oh, I don’t know. Honestly, I don’t even know what I’m doing here. ‘It’s a new treatment,’ they said to lure me. ‘You don’t have it in Russia!’ Big deal. All I wanted was to die in Moscow and that’s not going to happen. But I don’t want to talk about that…I don’t want to talk about myself. I’m gone, I’m not interesting anymore. In a moment I’ll be back to dust: a forgotten man in a forgotten place. You, on the other hand! You’re young, so young … You have a future, you have something to look forward to, something to hope for, something to wake up to in the morning that is not a CT scan or a blood transfusion or a ‘lab analysis’ or a ‘Mr. Barsky, have you given a urine sample this morning? Was it too yellow, Mr. Barsky? We’re a little worried, Mr. Barsky.’ ‘Oh, are you?! A little worried?’ I don’t want to talk about that nonsense. I want to talk about you.”

“I understand. What would you like to know?”

“For example, where do you live?”

“I live in Brooklyn, by a park that’s called Fort Greene.”

“A big park?”

“Not too big, I see it from my living room window.”

“Nice. Who do you live with? You’re married?”

“I used to be … I live with my best friend.”

“Well, that’s not the worst.”

“It’s not.”

“Do you like New York?”

“Not particularly.”

“Why not?”

“Because it’s a place that’s good at separating people; not so good at bringing them together.”

“Interesting. What’s your favourite city then?”

“I like Jerusalem.”

“Why?”

“It’s chaos, it’s the Middle East, everyone’s in your face. That’s more to my liking.”

“You’re an interesting type, Valery…I wonder what’s behind the mask, though!” he said, smiling.

I laughed. “”Behind the mask of a psychologist there’s another psychologist, and then there’s another one – until there’s a person.””

He laughed too. “Another question: what did you have for breakfast?”

“I had coffee and toast with strawberry jam.”

“I can’t have that, you know? Dietary restrictions,” Mikhail said, sighing.

“Mikhail Alekseyevich,” I said after a pause. “Your son told me that your cancer is at the fourth stage.”

“That’s right.”

“How has it been?”

The ping-pongy nature of our conversation never stopped. Mikhail didn’t want to tell me how it had been, but he also didn’t want to leave. He lingered in the office even after I had told him that our time was up. He wanted to talk about music, about places in New York that I liked, about where I grew up in Moscow.

John’s cozy room, the garden outside, my life’s story – it was all a respite from his painful reality: torn from his home, dying from cancer, treated by people whose language he did not understand.

Was it a psychotherapy session if I told him more about my life than he told me about his?

As we said our goodbyes, I wasn’t sure if he wanted to return or not. “Let’s be in touch,” he said as his wife was wheeling him out.

“I left the session feeling that I had met Nabokov’s Pnin” – a Russian intellectual in exile, never fitting into his surroundings, not quite sure what to do in America, how to be. Clearly not a person who would voluntarily stumble into a psychotherapist’s office asking for help. Smart, witty, playful: I really hoped I would see him again. I hoped that I had placed enough hooks, dismantled the psychologist stereotype he had had in his mind – it was the only way in, I felt. One word of jargon, one “It must be so hard for you,” one “I feel that you are experiencing some ambivalence about seeking help, Mikhail Alekseyevich,” one “There is something scary about opening up and talking about ourselves,” and he would have walked away, never coming back. “Americans,” he would have thought, “psychologists,” he would have told himself, “why can’t they talk in a normal way?”

A few days after the session, I called him.

“Yes, dear,” Mikhail answered in a soft voice. “I’m listening.”

“Your son told me that you haven’t been feeling too well.”

“Oh, you know, it’s to be expected with my diagnosis. But how are you? Did you have a nice weekend? Did you spend it in the city?”

“It was alright.”

“What did you do?”

“Went for a run, wrote in the library, met up with a friend.”

“Nice, very nice. Good for you.”

“Will I see you again, Mikhail Alekseyevich?”

“Sure, why not? But there is a small problem: I can’t leave the place I’m at anymore because of my condition. That’s what they told me, I’m stuck here.”

“I’ll come over.”

Three days later I appeared at the treatment facility in which Mikhail had been hospitalized. It was one of those modern places that are part hospital, part living apartments. There were inspirational quotes on the walls and names of donors. The rooms were given names like “Mist” and “Four Winds”. It looked like a getaway hotel by the hot springs, except that all the residents had cancer.

Mikhail was sitting in a wheelchair when I came, his tiny body covered with an enormous woolen blanket, pointing to the table next to his bed with medical equipment: “Needles, stupid needles …”

“Only a week had passed since our first meeting, but he looked much weaker and sicker”.

“First things first,” he said. “Are you hungry? Would you like to eat something?”

“No, I’m fine, thank you.”

“Well, at least allow me to pour you some tea.”

Drinking tea together, we eased into a conversation about Russia. Mikhail was dismayed by what was going on, telling me about how politics had ruined science, how people didn’t feel free anymore, how it all looked familiarly scary.

“Why does it feel like a damn cycle?” he wondered. “A predetermined fall to the abyss.”

“It does feel like a tragedy … We know how it will end but can’t do anything about it.”

“Exactly,” he nodded.

“When I think of Russia,” I said, “I only think about the very distant past, and about Moscow, which I absolutely love. It’s not the ‘right’ approach for immigrants, we’re supposed to hate it, to bemoan the glitzy, materialistic behemoth that Moscow has become. ‘Oh, how terrible! They only have Gucci boutiques all over, what happened to our Moscow?’ But beneath it, beside it, apart from it…You have the little squares, the theatres, and they renovated nicely, and I just love the feeling of walking there. It’s a funny thing to go back. You know they have this train from the airport that goes to the centre? Then you can take the metro, two stops to Kiyevskaya, around where I grew up. Last time I was there I got out of the train and was amazed: it’s like it hasn’t been twenty-five years, it’s like I never left. Strange feeling.”

“You’re a nostalgic person, my friend.”

“That’s true. But…there is this idea of a Country, of what it stands for, its values, etc. Living here, I’ve been thinking a lot about the bubbles, the niches in which we live; the Tuesday mornings and the Sunday afternoons. And sometimes they have nothing to do with the Idea, with Putin, with the ‘political situation’. It’s either good or bad. It’s a texture of living that either works or doesn’t.”

“I know what you mean.”

“I talk a lot for a psychologist.”

“I wouldn’t know.”

“Tell me something.”

“I was thinking about my family when you were talking. How we all spread around, like birds who flew to find warmer climates and never came back. My two sons are here: one in New York, as you know, the other one in Boston. They did well, I think, I hope.”

“How often do you see them?”

“Once a year, maybe twice. Tatyana and I visit occasionally, stay for the summer, spend some time with the grandchildren. Sometimes they would come visit us in Moscow. But it’s a peculiar feeling: after all this time, all this flying around, I am sitting in Four Winds ready to die and be buried, and where? Where do they bury people here?”

“I think in Queens, maybe in the Bronx.”

“Okay, ‘Queens’. What the hell is Queens? What does it have to do with me, with what I have done in my life?”

“It has something to do with your children and their children.”

“True. But it’s still odd, this whole thing. What is a place? What does it mean to be from somewhere, to live somewhere? I don’t know anymore.”

“Me neither …”

We never met at John’s place again. “Every week, at varying times, based on Mikhail’s medical procedures and condition, I would come to sit with him by his bed”, or take him to the porch outside Four Winds.

We did many things together. We watched YouTube (a scene from Tarkovsky’s Sacrifice with Bach’s St Matthew Passion superimposed was his favourite), we talked about his research and what he thought needed to happen to it, about the papers he wanted to finish but felt he would never be able to. We talked about Russian literature, about immigration, about Israel. We ate fruit and snacks. I brought him a ginger ale once (he had a sudden craving), and a chocolate bar another time – I don’t remember if he was allowed to eat that …

“Thank you for coming,” Mikhail would always say when he saw me. “What’s the news?”

He liked when I described, in detail, a certain place in New York, like a park, or a building.

His face would light up. “What do you see when you enter it? How big is it? What is its exact circumference?”

I never knew, of course, but I would google it in his presence and we would talk about that and I would learn things like the area of Riverside Park (266.791 acres) or the year the Avery Library at Columbia was founded (1890).

With time, and only after starting with the perimeters and context of his life, we were able to go deeper – dreams, regrets; soul stuff.

“What do you miss the most?”

“I miss my sofa in Moscow! I’m serious! We just bought it, it felt like a big achievement …”

“Funny.”

“I miss being needed.”

“Yeah …”

“No one needs me now. Who am I? An old man who’s waiting…waiting to end this.”

“What exactly do you mean by needed though?”

“Someone calls: ‘Prof Barsky, what do you think we should do with this experiment, this paper?’ etc.”

“What about your family, how do they need you?”

“I don’t know. Now, I don't know. I feel like I’m just a bit of a nuisance.”

“Judging by their relentless attempt to keep you alive, it doesn’t feel that way.”

“True. Maybe they got attached.”

“What do you mean, ‘maybe’?”

“Well, yeah, definitely.”

“It’s just that the work was at the centre of your life…Now that it’s been taken away you probably wonder what’s left.”

“You’re right. Not much. And let me be completely honest: I don’t know how to face this, Valery. I really don’t. Can modern psychology help us here?”

“I’m not sure.”

“Have you ever worked with dying patients?”

“No, I haven't.”

“So, what do you think, how should I do it?”

“Big question…Words like ‘meaning’ or ‘acceptance’ – you know them, you don’t need me to repeat them. But then how else can we talk about it? I’m not sure…Maybe reduction of bitterness? Making it a project of extreme gratitude to what’s around, to who’s around? I mean, it’s true for me as well – can’t hurt.”

““Coming to terms, coming to terms,” he said with a smile. “I’ve never done it!””

“We all suck at this. But tell me stories, it helps.”

Often when we sat on the porch he would put his hand on mine and we would be silent for a few minutes. Then, he would remember something recent or very distant, associatively it seemed, and tell me about it.

“There was this type, what was his name…Ah! Igor Bogdanov, yes, yes. Anyway, it must have been in the Seventies. We were just starting out, he was at my department then and we had a trip together to Nizhny Novgorod, to give a talk or something at the local university. We took the train from Moscow, seven or eight hours, I don’t remember, and delved into a conversation about the department, its politics – the usual stuff. And then he turns to me, I still remember it, and says: ‘Misha, you know what? You’re too gentle for science.’ That’s what he said: ‘too gentle’.”

“Are you?”

“I don’t know. Sometimes I think I was. Science, you see, you need to fight there, you need to push, forget about everything, about everyone. I am not sure I was able to do that. I have regrets, Valery. I live with certain regrets; I think I could have done more. Publish more, teach more, forgive me for the pathos: discover more.”

“Yeah…”

“I can’t shake these feelings off. I understand in my head: ‘You’ve done a lot, stop!’ But it doesn’t feel like that, it doesn’t feel enough.”

“How will we get you there?”

“I thought you were the expert!”

“I thought we had agreed it’s not scientific!”

He smiled and shook his head.

“There is this question in psychotherapy that I frequently think about: whether it is a process that’s supposed to make us feel better about who we are or to change who we are.”

“And what do you think?”

“I think, ultimately, it’s about acceptance.”

“Okay. But it bothers me, it does. It’s such a childish thing to be bothered with. I mean, how infantile: I am sitting here thousands of kilometres away, forty-five years later, ready to die, still thinking about that comment.”

“But what bothers us always feels childish. That’s inherent in ‘bother’.”

“How so?”

“‘How un-Stoic of me, why can’t I regulate myself, how am I swayed by stupid emotions…’ That’s what we think when we are ‘bothered’ by something, no? But what’s an emotion? It’s the basics, it’s us as a kid, it is childish.”

“Okay.”

“I have a friend in Israel who told me a story once. During his reserve service in the army he was stuck for weeks in a remote base somewhere. One of his friends came to him there in the camp, I think he was doing the dishes or something, and his friend goes: ‘Yona, you know what I realised? You’re a lone wolf.’ My friend told me that he could never forget that comment. It’s nothing, right? Completely innocuous. But that’s the thing: it’s always simple. A word, a sentence that hits something real. And then we obsess over it and feel foolish, or, if we’re lucky, relieved – in psychotherapy…”

“Was he a lone wolf?”

“Probably.”

“And if he were your patient would you have tried to change that?”

“I would have told him: when you hunt, hunt together sometimes, brother.”

Mikhail laughed, but then stopped. “And what would you tell me?” he asked, closing his eyes halfway. “Do you think I was too gentle?”

“I don’t know,” I said. “But if I had to guess, I would guess that your gentleness was a gift from God that made you the scientist that you are.”

***

The treatment facility in which Mikhail had been hospitalized was in a constant state of buzz. There were doctors and nurses and relatives and other patients in perpetual movement. There were many TVs and they were always on and for some reason it was CNN and the news, most of the time. There were people with different-sounding professions that would come, every couple of minutes, it seemed, to the room and talk about physiotherapy that needed to be done, “management of care” that had to be managed, financial decisions that needed to be made, Mikhail’s diet, furniture that could be brought in or out according to Mikhail’s wishes, books that they were able to order for him in Russian and he should explore this opportunity because not in every place was it possible but it was possible there and if he would only ask…

Is the mobile phone working okay? Is the Wi-Fi signal strong enough? Would he prefer a vegetarian option for dinner? Does he need more channels in his cable? There are now options in Russian.

Mikhail, weary, deaf to this all, was motionless in reaction to this spinning around him. “Why can’t they leave me alone for a moment?” I imagined him thinking. “Why all these questions?”

“I don’t know if it’s true, but I felt that his life had been about protecting his sanity”, his focus, from the intrusion of this energy of mundane concerns. I don’t think that just because he had cancer that was slowly killing him, he became a person who could not stand any of that, who could not bring himself to care about that non-important nonsense. And I sympathized with him, obviously, and felt that it was appropriate that we were meeting at that frantic facility and not in a secluded office, because suddenly it emphasized an essential part of psychotherapy: its fending off of corrosive distraction – standing firm in the face of the never-ending attacks on the things that matter. Sorry for the clichés, but it did feel like we were creating an island, and we tried to protect that island together. And he was not just a patient, but rather a collaborator in that process, which was as much mine as his, I believe.

Whatever was going on in my life in the months of August and September of 2015, wherever I was – Mikhail was with me, transcending the confinements of the “consulting room”. Like a good friend who becomes a part of your daily existence, to whom you say that you feel tired, or that you like your tea with no sugar but with lemon, or that your back has been bothering you recently and it’s annoying. Somehow, he became that person. “He liked to call me on the phone, between our sessions, to tell me a story, or a joke, or ask for my “opinion” about something”. “Valera, milenkiy,” [my dear, in Russian] he would frequently conclude the conversation, “I miss you.”

Gradually, it became difficult for Mikhail to talk. He would take long breaks between sentences, holding his head as he tried to say something. “Valera,” he would say, “do you think we can fully be known by another person?”

“I think there are parts of ourselves that remain forever only ours.”

“Yes, yes. It’s true … And that’s what remains?”

“What do you mean?”

“That’s what we take with us?”

“I think we take more.”

“Maybe. It’s just that sometimes I think, what was it all for …?”

“You’re in a bad mood today.”

He laughed, weakly. “You’re right. It’s just … I don’t know how I can accept this. I had visualized something different.”

“What?”

“First of all, yes, and forgive me if it sounds infantile, but this was supposed to be happening in Moscow, in my apartment. I mean for heaven’s sake, I spent forty years there.”

“What else?”

“I didn’t achieve enough. I just didn’t. I was okay, I was a good researcher, but I could have done more. Much more. And it bothers me. Why didn’t we meet twenty years ago, Valery? This isn’t relevant anymore…What can you tell me now that will change that? Nothing!”

“Twenty years ago I was thirteen.”

“You know what I mean.”

“You mean that I was a top therapist at thirteen. I think you’re right.”

“Be serious.”

“There’s nothing to be serious about. It’s a bunch of thoughts in your head. It’s a fantasy that you created because you had thought that life is measured by some yardsticks that kept evading you, that kept getting higher and becoming unreachable. We make ourselves miserable believing in this nonsense, myself included, but it’s all about letting it go. And it’s never too late and you know it. You know it’s not too late because you can still think and you can still feel and you can look around and say, ‘Thank you very much world, God, universe, fate, me…’ – whatever you believe in – ‘for giving me my wife who has cared for me all my life, my two great sons, and their children who will be coming to my grave because that’s how they were raised. And thank God for at least one article or paper or invention that actually mattered for something and wasn’t just a bunch of words.’ You can do it right now.”

“Valera…”

***

A few more weeks had passed when I came to his room and saw that he couldn’t get out of bed anymore. He would lie, eyes closed, hand on his forehead, in pain, mumbling something to himself. He would try to get up on his elbows when I came, sometimes succeeding, sometimes not.

“Well, that’s what it’s come to,” he said in a shaking voice. “What should we talk about?”

“How is your pain?”

“Oy…” he sighed. “Look at my hands,” he said. They were all pink and swollen. He was dying.

And “I remember looking at him, understanding how ridiculous my thought was, but also that I couldn’t help but think – “Why? Why is he going? In what way is that fair?””

“Did you get some sleep tonight?”

“I did, I think.”

“Can you eat at all?”

“A little bit …”

“Can I bring you something?”

“No, no, I am okay.”

“Do you want me to read you something?”

“Yes, please.”

“Okay. Believe it or not, I’m reading you this from my mobile phone.”

“Wonderful.”

“‘And there in the middle, high above Prechistensky Boulevard, amidst a scattering of stars on every side but catching the eye through its closeness to the earth, its pure white light, and the long uplift of its tail, shone the comet, the huge, brilliant comet of 1812, that popular harbinger of untold horrors and the end of the world. But this bright comet with its long, shiny tail held no fears for Pierre. Quite the reverse: Pierre’s eyes glittered with tears of rapture as he gazed up at this radiant star, which must have traced its parabola through infinite space at speeds unimaginable and now suddenly seemed to have picked its spot in th

Reflections of a Psychology Resident in Trauma and Acute Care

“I can’t believe this is happening right now! I need to pinch myself” is a thought that has passed through my mind multiple times during my residency in trauma psychology at a level 1 trauma center. I knew it would be different from typical outpatient psychotherapy and assessment, but I still hadn’t anticipated the intensity and intricacies involved, or the adjustment required to my clinical approach. In traditional settings, we tend to encounter people months or years after major medical crises and life-changing injuries are sustained. “The cases I now faced in the trauma center were acute, often causing visceral reactions that weighed on my heart in ways I hadn’t experienced before”, and they stretched and sometimes fell beyond the schemas provided by my graduate training.

The Intensity: Extreme Presenting Problems

Most of the patients I saw were admitted for treatment of injuries following vehicle collisions, falls, gunshot or stab wounds, pedestrian or bicycle vs. auto accidents, self-inflicted incidents, and periodically complex and life-threatening medical problems. The range of stories and circumstances I encountered on a regular basis were like the far-removed scenarios portrayed in entertainment or reported on the evening news, including brutal suicide attempts, physical and sexual assaults, attempted murder, hostage situations, home invasions, drownings, and almost stunt-like accidents. Some of the most disturbing, though, were the most seemingly innocuous accidents that resulted in unfathomable and devastating consequences.

“It’s no surprise that returning daily to a workplace like this one would have a personal, cumulative effect.” I noticed that I drove a bit more carefully. I evaluated my own financial situation while envisioning my own hypothetical future in which I or my spouse was in the hospital under circumstances similar to those of my patients. I imagined how I might feel, pacing the hallways, gazing at a loved one in a hospital bed, or being delivered painful news. The flip-side of being empathetic, a trait so many clinicians possess, is that we can see ourselves in the suffering of others. So, seeing the look in the eyes of those who are told they will never be independent again (e.g., due to complete SCIs-spinal cord injuries), or who are grappling with the reality that a loved one’s injuries are not or were not survivable, or when they learn they were the cause of another’s death, was profoundly painful on a human level. The mirror neurons facilitating our shared humanity fire, and someone else’s current predicament and threat of mortality became my existential discomfort and personal grief as well.

The Intricacies: Working in Medicine

In anticipation of encounters with our clients, we therapists typically wonder, “Will Sarah show up for her appointment today?” or “I wonder if Frank remembered his homework?” Questions I often found myself wondering in the trauma center went something like, “Is Jennifer in surgery again?”, “Has David been extubated yet, so we can converse?” or “What is Joe’s GCS (Glasgow Coma Scale) and/or Rancho score, and is it high enough to permit engagement in meaningful conversation?” Moreover, privacy was minimal, and I had to grow accustomed to visits with patients being interrupted by other essential (trauma surgeons) and often also comparatively non-essential (custodians) staff. I learned to discern when and how to defend our time and request, “Could you come back in 15-20 minutes?” while taking patient priorities into consideration.

Discernment was also required for determining the level of engagement with a patient and/or family based on their location in the stages of acuity. Was the patient just admitted? Is the family in the midst of the most acute stage of shock or grief? Is the patient really needing mental health triage? For some, answering questions posed by a relaxed professional is reassuring and distracting; for others, it may feel insensitive. “My initial visits typically involved collecting a brief psychosocial history, but doing so is simply not appropriate with, for example, families grieving the anticipated passing of a loved one.” In those cases, I simply helped the family to become aware of available support.

Often in trauma cases, physical recovery must make headway first, but sometimes emotional needs are salient from the get-go. Once, I visited a woman the morning after a terrible car accident. She asked her family to leave the room, allowing us to visit for the next hour or so. She had questions about pre-existing anxiety, acute stress, psychotropic medication, psychotherapy, faith, and how to overcome grief associated with another’s death from the same accident. It was perhaps one of my most memorable visits with a patient, and one of those therapeutic encounters in which what we have to offer and what the patient needs align perfectly.

I have often joked, “Which has more acronyms, the field of psychology or the military?” I think the military takes the cake on that one, but medical jargon is nearly as unfamiliar to a professional outsider without formal medical training. Terms used regularly during our morning multidisciplinary “dispo” meetings were often totally foreign: NG tubes, pigtails, cannulation, fasciotomies, TPN, rhabdomyolysis, dysphagia, Miami j collars, to name a few. What I found particularly entertaining and surprising was the assumption on the part of the medical staff that I understood what they were talking about when providing me with updates about a patient or explaining medical procedures and their complicating factors with technical language. Other concepts were easier to understand, such as “we sucked peas out of his lungs.” The first task entailed learning what many of these terms meant.

The second task was to determine if and how medical concepts might have significance for my work with the patients. Sure enough, many did. Ventilator weaning and “high flow” trials have particular significance in spinal-cord-injured patients, as these processes often elicit substantial anxiety due to uncomfortable physical sensations and often subsequent, though inaccurate, fears of suffocation. This anxiety can stall or slow progress towards independence from life support and therefore potentially shift discharge plans such as whether to consider short-term rehabilitation or long-term care. Other medical conditions also have clinical implications. Proximity of amputations (e.g., foot vs. leg) has bearing on functional outcomes and emotional adjustment. Fistulas, such as gastrointestinal fistulas, are abnormal openings between or within internal organs and other structures, often resulting as collateral damage from surgery. They are difficult to repair and complicate or substantially delay discharge plans, demoralizing many patients afflicted by them. Ostomy bags, which may be necessary for patients with fistulas, are another cause of maladaptive adjustment, especially for younger patients. Perhaps one of the most severe situations is the need for a patient’s placement on the ECMO (extracorporeal membrane oxygenation machine), a “hail Mary” medical effort to save a patient’s life. The ECMO machine functions as total life support, providing cardiac and respiratory functions, and is intended to be a bridge to other treatment. Psychological support is provided every time a patient is expected to be an ECMO candidate.

Communication with medical staff in the trauma center is not entirely dissimilar to the communication with medical staff in primary care settings which many mental health professionals are more familiar with. However, determining what is useful for them to know in the trauma surgery department strikes me as much more difficult. Conversations are not about outpatient weight loss, smoking cessation, and medication compliance, but about behavioral, psychological, and emotional factors that happen to be deeply embedded in a unique and intense medical system. “Life and death issues are more often at the forefront.” Much of what we discussed with patients’ treatment teams was problem-solving patient-specific challenges that might require increasing patient morale or adapting the environment to fit a patient’s needs. It goes without saying that we were asked to evaluate patients when apparent psychological comorbidities were interfering with treatment progress or even when ambiguous patient behaviors left their treatment teams puzzled (e.g., reported the loss of sensation or movement in limbs with no apparent medical evidence to support such deficits).

The Adjustment: Clinical Work

The sights, smells, and sounds in the hospital are unparalleled elsewhere. Gnarly bruises and X-fixes, splashes of blood on the floor, bloodshot eyes, genitalia, unidentifiable bodily fluids collecting in clear containers hooked on the end of hospital beds, the occasional stench of excrements in hallways, beeping alarms of bedside machines, images of damaged body parts from post-explosive incidents, a deceased child’s body. Once I visited a man after an assault. His eyelids were sutured closed because of the nature of the injuries his face sustained. While we were talking, he coughed, and the pressure immediately caused blood to stream from his eyes. He commented, “I think my eyes are watering…” I paused before responding. I didn’t want him to panic, but I knew my subsequent departure to get help would probably sound the alarm anyway. “Actually, I’m afraid you’re bleeding a bit. I’m going to get your nurse,” I said. He started whimpering, the panic rising. “Don’t worry; we’ll take care of you right away! Take a couple deep breaths.”

As is the case in some other settings, our clients or patients were not always seeking mental health services. While some had requested it, patients in the trauma center typically are not looking for mental health care and occasionally are not very receptive to it. Normalizing talking to a psychologist right off the bat is important. So, after introducing myself and with a sincere but wry smile on my face, I tended to say something along the lines of, “Most people don’t plan on coming to the hospital, let alone the ICU. It’s pretty overwhelming. While everyone else’s job here is to take care of you physically, I’m here to check in to make sure you’re doing okay otherwise–to make sure that your time here is as smooth as possible.” The goal is to make interacting with a psychologist seem routine (as it often is) and easy, in part because there is not always much time to build rapport.

Understandably, many of the conversations center around the cause for hospitalization and related injuries and treatment. Follow-up questions will entail quality and amount of sleep, pain levels, appetite, and mood. The mode of interacting with patients, at times, differs substantially from what happens in traditional psychotherapeutic settings. Unless there is a glaring reason not to, I responded with a hug when prompted, asking no questions. “And I cried with grieving families when sincerely felt waves of emotion welled up, though I made sure to not cry more than they did!” While sitting in one family meeting in which the trauma surgeon described clearly how he had exhausted all options to save the teenage boy’s life after falling ill suddenly just several days earlier, the family broke down in tears. The patient’s nurse, my practicum student, and I could not help but also freely shed tears with them. Due to the intensity of patients’ medical circumstances and threats to life, withholding expressions of genuine emotion appears cold and overly clinical, practically inhuman.

Clinical Interventions

A state mandate requires psychological care for brain and spinal cord injured patients. In addition to those patients, we evaluated and treated patients experiencing psychological symptoms that are affecting treatment or having trouble with general coping while hospitalized. These included generalized or situational anxiety, depression, acute stress and adjustment difficulties, grief/loss (life, limb, or function), and suicidality/risk (specifically if there is a need to place a patient under suicide watch and pursue involuntary psychiatric hospitalization). Additionally, we screened patients for psychiatry services and evaluate for capacity in medical decision-making. Occasionally, particularly unique cases would come up, such as when a treatment team cannot determine a medical cause for a patient’s altered mental status. Lastly, we were consulted to provide family support when needed and to authorize child visits to loved ones in the ICU-when they were younger than 13 years old.

Due to the constraints of the setting (limited privacy, limited time per visit and number of visits, physical limitations and particular focus of stressors), many of the interventions were supportive and patient-centered. Donald Winnicott’s notion of providing a holding or “containing space” for whatever a patient needs comes to mind. Interventions frequently involved psychoeducation and coping skills development, such as relaxation strategies (deep breathing and visual guided imagery) that serve multiple purposes, from facilitation of sleep to anxiety and pain management. The monitors showing a patient’s heart rate provided accessible biofeedback to assess impact. Naturally, and unfortunately, deep breathing is not possible for intubated/ventilated patients. I encouraged patients to identify other coping skills. For example, one patient described how much she loved music, so we discussed how incorporating periods of time to listen to her favorite music each day would help to improve her mood. Also, I occasionally suggested patients utilize affective labeling1, either privately or in conversation with others, to reduce emotional distress.

It was particularly rewarding to find ways of adapting traditional psychotherapy techniques and concepts into concisely-packaged interventions in this setting. Basic cognitive-behavioral concepts could be explained to patients in ways that are easily understandable and immediately applicable. Unpleasant circumstances could be positively reframed. The relationship between automatic thoughts and emotional and behavioral consequences could be briefly outlined, and even cognitive distortions could be gently pointed out with the purpose of promoting more adaptive adjustment while under inpatient care. I might say to a patient, “You are absolutely faced with objectively legitimate physical challenges right now. That said, sometimes the particular ways in which we react to our circumstances can actually create additional obstacles that we just don’t need to deal with as well. Let me describe a bit more about what I mean, and you can tell me what you think.”

Since this was a trauma environment, and nearly all the patients we saw had undergone major traumatic events, “I got particularly excited to find ways of packaging evidence-based trauma treatment interventions or concepts for accessible use” – Cognitive Processing Therapy (CPT), being a particular favorite. After providing basic psychoeducation about acute stress and normalization of such responses, I liked to use a variety of analogies to further illustrate what acute stress responses are and how one might consider responding to them with the goal of healing in mind.

To illustrate why re-experiencing symptoms occur:

  • Our lives are generally like flat lines, stable and constant, with occasional blips (reflecting moderate stressors such as interpersonal conflicts and illnesses), and traumatic events are a major blip on that line. (This is consistent with the phenomenon of flash-bulb memories.)
  • A file folder (traumatic event) remains outside of the filing cabinet (narrative of one’s life, full of other experiences) until it can be adequately sorted and placed (This is an analogy borrowed from the CPT manual materials.)

To illustrate why avoiding avoidance and emotional processing are important:
  • Physical wounds require tending (cleaning, stitching, ointment) because, without this, they can become infected or heal improperly. Emotional wounds are similar, needing attention and care, in the form of emotional processing, for the sake of closure.
  • As children, when we learn to ride bikes, we often fall off, maybe skin a knee or bruise a thigh. If not coaxed into getting back on, fear of riding a bike will maintain or even increase. But if the fear is managed and overcome, the new skill is mastered, and the fear dissipates. (This is especially so for patients after car accidents, for instance.)

On several occasions, I noticed that maladaptive automatic thoughts-or cognitive distortions had already developed in the wake of a major trauma. From a CPT framework, these are called “stuck points” and are either “assimilated” (past-focused, typically on traumatic incident) or “over-accommodated” (present/future-oriented statements). These are problematic because they will likely interfere with healthy post-trauma adjustment. The major themes of trauma are often apparent and include control, responsibility, intimacy, trust, and safety. I recall a few instances of talking to husbands of female patients who blamed themselves for vehicular accidents that were entirely due to extenuating, external factors. Their self-concepts, characterized by competence and accomplishment, paired with immense love for their spouses, meant they pinned the blame squarely on their own shoulders, despite intellectually understanding otherwise. Emotional reasoning at its finest. I hoped that outlining some of these cognitive and emotional responses and challenging these stuck points empathically planted seeds for greater self-awareness and supported progress on a more adaptive, long-term trajectory.

Of important note, conversations about trauma in the acute phase such as this are not the same as structured crisis incident stress debriefings that are largely unsupported or even contraindicated in the literature. Patients and family members are left to determine whether or not they want to discuss the traumatizing incident, and emotional reactions are rarely therapeutically explored in significant depth. While conducting a mental status assessment, I would ask patients if they recall the incident, while informing them I am not asking them to tell me about it, though they can do so should they choose. This provides them with more control and a greater sense of security when discussing their mental health status.

Other psychotherapy skills we learn as clinicians were relevant in this setting, including:

  • recognizing the time and place for silence
  • identifying and therapeutically pointing out avoidance (or when the molehill is the cover for the mountain)
  • utilizing empathy without becoming consumed by it
  • consulting when faced with ambiguity and ethical quandaries
  • getting creative in efforts to connect with others from different walks of life
  • permitting oneself to not have all the answers
  • being resourceful in clinical problem-solving, particularly in a multidisciplinary setting

In Closing, For Now

The trauma, acute care setting left me with a resounding sense of gratitude (which I also find is a terrific inoculator against anxiety and apprehension). In observing the enormity of human suffering, I was humbled when counting my blessings and reflecting on the dedication and compassion displayed by so many members of the medical teams. Friedrich Nietzsche famously stated, “He who has a why to live for can bear almost any how.” The existential significance of this work was not lost on me. What amazed me is not just that people find a way to face another day under truly dire circumstances, but that so many do. I have come to accept that, in this context, I may not always have been able to treat the diagnosis and cure all the symptoms. The environment and physical conditions provided ever-present limitations. But I developed a tremendously deep appreciation for the resilience of the human spirit and appreciated the significance, and perhaps inherently healing effect, of sitting with others during their darkest moments.

Related References
Kircanski, K., Lieberman, M. D., & Craske, M. G. (2012). Feelings into words. Psychological Science, 23(10), 1086-1091. 
Resick, P. A., Monson, C. M., & Chard, K. M. (2014). Cognitive processing therapy: Veteran/military version: Therapist and patient materials manual. Washington, D.C.: Department of Veteran Affairs
 

The Healer that is Hurting

Life’s a beach, or so I’m told. Paradoxically, death may draw many apt analogies from this image.

This summer, my work was humming along to the tune of vibrant pulsing music, much like a beloved beach getaway. My client load, lightened by family vacations, left breezy spaces in my schedule for unpacking course development and writing projects that had been tucked away for a while and for unfolding new ideas I had been eager to examine in the full light of day.

The sun shone brightly down as I played with the projects like beach volleyballs in the ocean, keeping each in the air with my respective co-teachers and co-authors until they skidded across the water before me with large splashes of inspiration, ready to be passed, set, and attacked in turn with greater intention.

And then, I woke up one morning this week to an email informing me that a buddy of mine who has been battling brain cancer for more than a year is now in end-of-life care. In cruel and rapid succession, thirty minutes later, I learned by telephone that my mother-in-law died peacefully in her sleep the night before, after her own two-year fight against cancer. Despite the battles my loved ones had been fighting, the news of these events was both sudden and unexpected, like going for that ball in the water and falling off the sandbar that I didn’t even know I was on into the depths of the ocean, scrambling to find solid footing again.

Anticipatory grief was launched from the American side, where my buddy is from, and was amplified by the full force of the shipwreck of my mother-in-law’s passing on the Swiss side, where I now live. It has been two and a half years since my last family loss, my maternal grandfather, my last grandparent. I remember that it hurt to lose him – an enormous, ocean-sized bucket full – but I had forgotten how ravaging grief feels in the moment it is felt. Until now.

Grief is often described as coming in waves. I had forgotten how bone crushing and soul squelching the break of those tsunami-sized waves feels until I received news of these recent events. Gasping. Sobbing. Roaring. Crashing. Crushing. Overtaking. Undertowing.

The former lifeguard in me recognized the drowning person’s combat, wordless and writhing under the weight of the wave of grief, struggling to keep her head above water, breathing in fits and spurts. Time is different in that space and place, seemingly at a standstill in the struggle to get to the surface, to figure out which way is up again. Until grief, finally deciding to subside… leaves the body limp and devoid of form or feeling, like seaweed tossed upon the shore both as an afterthought and as a reminder of the power of the wave that has (temporarily) receded.

I am still on this sober beach, lying on the sand in the ebb of the tide in the interim between my mother-in-law’s death and burial, her demise and our ceremonial remembrance of her. I am experiencing the void of losing her and the unbearable anticipation of the loss that I know is still coming – the next hard wave that will hit when I want to pick up the phone after work to pass the commute home in her company – only to realize that I will never be able to do that again. I am also in anguish about what I cannot see coming – how I will react to the funeral rites I will experience for the first time as a family member in Switzerland. I have attended funerals here before, but not for someone within my family.

Despite my full integration into this Swiss society I’ve called home for over a decade, the subtle differences in rites and rituals here contrast from those of my home Appalachian culture and signal my otherness, and aloneness, to me. Certain differences in the timing of things and in how the ceremony is performed are culturally and painfully dreadful to me, like skidding against hard rocks at the bottom of a crashing wave without choice or conceivable resistance to the process.

Thus, documenting my feelings, resonances, and imaged analogies while I am still in the throes of fresh grief will serve to remind me, the healer that is hurting, that it is important to let people feel what they feel, to ask them to describe their resonances in whichever directions their sensations take them, to explore what grief and loss mean to them and how it is expressed in their culture(s), and to bear witness to their pain and struggle without trying to fix what is ultimately unfixable.

I will sit with my pain and accept it as the old acquaintance it is, letting it accompany me on this voyage to the beach and home again in the full consciousness that the length of this journey is unknown and impressible. I will also bear in mind that, at some point, I will not remember it as vividly as I feel it in this moment, and I will try to take some small comfort in that. I will eventually be able to feel the warmth of the sun again, despite its continued shining. And, when I sit as a counselor with grieving families, I will not soon forget – and will never minimize – the impact of the roaring waves of grief that cover them until their seas eventually calm again, even if just temporarily.

Grief is a Strange Land

My mom died recently after struggling with dementia and severe rheumatoid arthritis for many, many years. I moved to the Bay Area from the East Coast in the year 2000 to be closer to her, as I thought she might not have much time left, and 17 years later, on a sunny spring morning shortly after my 43rd birthday, she died as I lay in a liminal half-sleep between the 3rd and 4th round of my snooze alarm. I woke to a series of texts from her very dear Armenian-American caretaker at her assisted living facility:

9:19am
Hi Deb,
Mrs Linda’s blood pressure dropped
significantly this morning, called
hospice to monitor her

9:34am
I’m sorry to let you know, Mrs Linda
Passed away 🙁

What?! While I slept? Over text?! I wandered frantically around my apartment for a minute, or ten, searching for my mother’s gone-ness, eyes open wide, unblinking.

I had waited and prepared for this moment, had even started praying, tentatively and awkwardly, that she be released from her incontinent, bed-bound, arthritic limbs and atrophied mind, and yet: How could she just die like that? I was going to go visit her in two weeks for her 78th birthday. I should have gone sooner. I should have gone sooner.

Much of that day was spent a few inches outside of my body as I negotiated with the mortuary, made calls to friends and family, and repeated the phrase “My mom died,” each time a dissociated succession of syllables. My friends knew of her long struggle, my long struggle, and said things like, “You must have mixed feelings.” I did not have mixed feelings. I was devastated.

This was Friday. I went back to seeing clients Monday, and didn’t tell anyone that my mother had died. Eleven years earlier, when my father died after a struggle with Alzheimer’s, I had also gone right back to seeing clients at my practicum in graduate school, but because I had canceled sessions for two weeks while he was dying, I told them why I had been away. This time there was no dying—just death—and not many details to attend to after. My mom’s sickness had been long, her personality alienating, her plight sad; by the time she died there were no friends left, no one with whom to gather for a funeral.

Not having skipped a day of work, I decided I would only share my loss if it arose organically with a client. It didn’t. I felt protective of them. How hard would it be to talk about themselves, whatever they were working on at the moment, once they found out my mom had just died? Plus, I was still kind of numb—would I come across like a zombie with no remorse? Would I be able to reassure them that I was in fact OK and that I was just where I wanted to be? I imagined what a drag it would be to go to my therapist, prepped to talk about the week’s pathos, only to find out her mom had died. I would feel like a self-involved jerk diving into my own preoccupations in the face of her loss, and would feel like a jerk talking about how I felt like a jerk talking about my own preoccupations. No, I didn’t want anyone to bear my burden. That’s not why they come to therapy, after all.

The opaque sense of unreality that arose in the weeks after she died—my palette of sensations muted like a blue twilight after the sun disappears—was almost comforting. “Perhaps this won’t be that hard,” I thought. After all, she’d been deteriorating, and then dying, almost forever. Losing her had been a slow and steady stream of small infirmities and indignities rather than a flash flood, the erosion of her essential being an accumulation of griefs I hoped would inoculate me against the crushing pain I had suffered after my father died.

But I didn’t know how to both bear my burden and not burden clients. I wanted to be doing therapy—I felt present and alive with my clients—but after a few weeks it felt like the vessel in my heart where I hold people’s pain, their stories, had no more room in it. I hadn’t entirely understood that place in my body until it stopped working, and it was alarming. Because I wasn’t experiencing paroxysms of grief, weeping uncontrollably at random intervals, I mistook myself for “not really grieving.” This was compounded by the fact that my mom was in many ways a “not-good-enough” mom—her mental and physical illnesses had compromised her ability to mother long ago, but I thought I had “dealt” with that grief already, damnit. So what was this parched-solar-plexus feeling?

Ah…It was my grief.

You see, I loved her madly. Still do.

I took the week off from work in an effort to bring some space and consciousness to my grieving. I slept, read, wrote in my journal, saw beloved friends, exercised, booked an extra therapy session, got a massage. It was awful. Anxious, listless, unmoored from my routines, I spent the week berating myself for not doing a better job at grieving. I felt it was up to me to figure out an appropriate ritual to mark her death, but the idea overwhelmed me. What would I say? Who would I want to bear witness? Inside or outside? What spiritual tradition to draw from? My dad was Jewish. She was a blend of everything and nothing, but a spiritual person. Where would I release her ashes? It was too much to figure out; I was tired. I stuck her ashes in the closet near, but not directly next to, my father. They hated each other. Was it OK for them to be in the same closet? I watched a video about cremation and decided it was.

The capacity to be wise and spacious around others’ pain, the sense of tenderhearted compassion that comes so readily through me in my role as a therapist, often tricks me into thinking I don’t need help with my own struggles. But I don’t have me the way that my clients do. I have my own therapist and she, in turn, doesn’t have herself the way that I have her. We cannot be our own therapists. Therapist-Me is also an orphan right now, struggling to make sense of death, of having no parents, of the freeing and terrifying reality of being on my own—generationally-speaking—for the rest of my time here on earth. No amount of “self-care,” parenting of my inner child, and guided meditations makes Therapist-Me available to myself.

Despite years of training in the mental health field and working with people as they struggle with death, I’m struck by what a strange land grief is for me. I’ve heard many therapists say that their own grief has brought a richness and depth to their work with clients, and I think that is true for me too, but not in a particularly tangible way. What I am most aware of is how nurturing working with clients is to me right now. It is the only place where I am fully present, and being present is a tender relief as I navigate the complexity of loss in my own life.

How have your experiences of grief impacted your work as a therapist? What has helped you? What has not? I would love to know. Feel free to send me an email at: Deborah@psychotherapy.net.

Robert J. Lifton on Political Violence, Activism and Life as a Psycho-Historian

The Psycho-Historian

Deb Kory: Robert Lifton, you’ve long been one of my heroes, and I’m delighted to be able to interview you and share your work with our readers. For those who may not know, you are a psychiatrist, researcher and writer, and have written many books on the psychology of political violence, the effects of such violence on both perpetrators and victims, totalitarian ideologies, the traumas of war, the threat of nuclear weapons, and much more.
I’m an early career psychologist and I started my doctoral program back in 2004, just before revelations emerged about psychologist’s involvement in torture at Guantanamo and other CIA black sites. It would turn out that the involvement went up to the highest levels of the American Psychological Association, but outside of a small group of activist psychologists, nobody in the field of psychology was talking about it. You were among the few mental health practitioners who publicly denounced this collusion with torture from the very beginning. When I wrote my dissertation on this subject, I drew heavily from your writings, particularly The Nazi Doctors: Medical Killing and the Psychology of Genocide, to help me understand and contextualize how seemingly normal, good people can commit evil acts.
As I came to learn through reading several of your books, your activism and commitment to social justice has been a fundamental and inextricable part of your professional work as a psychiatrist, researcher and writer.
Robert J. Lifton: Well, thank you.
DK: Your most recent book, Witness to an Extreme Century: A Memoir, weaves together your various works with your personal life, and the ways in which witnessing atrocities—you were a teenager during WWII, for example—impacted the course of your life. In it, you call yourself a “psycho-historian.” Can you explain what that means?
RL: It means applying a psychological approach to historical events, which requires a handling of psychology that is open-ended and sometimes outside of the orthodoxies within our field. The derivation is from Erik Erikson, who used the term as an adjective—he spoke of a “psychohistorical perspective.” It’s probably better to avoid the noun.
DK: When you say applying psychological methods, are you talking about research methods in particular?
RL: In my case, I’ve systematically used a psychological interview. I believe very much in the interview method. Though I haven’t spent much of my career doing psychotherapy, I have done a kind of equivalent by means of interviews. I think that the psychological interview is a beautiful instrument if one is careful and rigorous about the context. And it’s underused, even in the profession of psychology.
DK: How so?
RL: In terms of psychological research, the interview has become much less popular—the tendency is more toward questionnaires or statistical studies these days. The interview method that I have made use of is a modification of a psychoanalytic method. I was trained in psychoanalytic psychiatry, as we used to call it, and then had some training in psychoanalysis, but there was a kind of paradox for me. I thought then, as I still do, that psychoanalysis has been a great intellectual movement; but in its more rigid and dogmatic form, it can undermine the very historical approach that one wants to develop. So I modified it quite a lot.
DK: You talked in your autobiography about studying at the Psychoanalytic Institute in Boston and how you found some similarities between the kind of totalitarian mentality that you’d found among survivors of Chinese thought reform and the atmosphere at the institute. Can you say a little bit more about that?
RL: I was careful about how I wrote about that. I didn’t dismiss psychoanalytic training and, as a matter of fact, I learned a great deal from the psychoanalytic training that I did. But I found that there was an inherent problem in psychoanalytic institutes. Many others had spoken of it, but I had studied Chinese thought reform as well as the Cultural Revolution and so had that framework. The difficulty in psychoanalytic institutes at the time was that one was simultaneously a student, a candidate, and a patient. In a sense, the same people were one’s teachers, one’s therapists, and one’s judges in terms of whether one was accepted into the profession. There was a danger of requiring adherence to the existing doctrines as a necessary element for success, as opposed to originality or a creative perspective.
So I said those things, and I made the comparison with a thought-reform like environment. I did it carefully, but it was a fairly bold thing to do at that early stage of my own work.
DK: Were you ousted?
RL: No, no, I wasn’t ousted at all. There have always been within psychoanalysis people who are more open and more critical of their own group. Erikson was like that himself, as have been many other psychoanalysts whom I’ve known over the years. In fact, over time psychoanalysts have invited me to their programs—I’ve spoken at various institutes and groups. I chose to discontinue psychoanalytic training when I received a chair at Yale back in 1962, both because I had reservations about the dogma, but also because I had no need to become a psychoanalyst in terms of the direction I was going in my research. But, still, psychoanalytic tradition has a lot to offer and has been important to me in my work.
DK: You also wrote that breaking away from the Institute and the psychoanalytic framework allowed you to approach Freud in a new way and to connect to some of his more radical ideas.
RL: Yes, that was important to me. Back then, Freud had almost a deified kind of standing at the institute, and there were constraints on criticism and open-minded thinking that might find him lacking in any way. And so it was more difficult for someone like me to really engage with his ideas in a creative way. Later when I left the Institute, I was free to do that and did so in particular in relation to death and death imagery, which I was exploring after my study of Hiroshima survivors. I found that Freud had a lot to say about these things if one could translate the instinctual rhetoric into a rhetoric of symbolization. That’s what I tried to do in relationship to death imagery in one of the books that I wrote in those early years, in 1979, called The Broken Connection: On Death and the Continuity of Life. It was about those issues as they affected psychological and psychiatric thinking in general.

Hiroshima and the Symbolization of Death

DK: Can you explain what you mean by the symbolization of death? It sounds in some ways like an existentialist perspective.
RL: I don’t call it existential or phenomenological, but it resembles that kind of approach in many ways. What I mean by a symbolizing approach is that Freud did speak of symbols in his work, but it was more in terms of one thing representing another. A pen symbolizes a penis or whatever. But a broader approach to symbolization came through Ernst Cassirer and Susanne Langer, symbolic philosophers. Their idea of symbolization is that the mind can perceive nothing without recreating it, at least during adulthood and during mid and late childhood. We are inveterate symbolizers. And that means that every perception includes a recreation with this wonderful and sometimes dangerous gray matter of the human brain, so that we recast every perception and have no choice but to do so.
That’s what symbolization really is. And in that sense, although Freud rightly emphasized denial of death, I could evolve making use of his work and also the work of Otto Rank, a great early psychoanalyst, the idea of the symbolization of immortality—not as a denial of death, but as a symbolization of human continuity. Because we’re a cultural animal, we need to feel a continuity with those who go before and those who will go on after what we know to be our limited life span. And that is a symbolization of immortality rather than a literal claim to it, which of course is never realizable.
DK: It sounds like a non-religious way of thinking about what happens after death. Did these ideas emerge out of your study on Hiroshima survivors?
RL: Much of this research about death and death symbolism did evolve from my work in Hiroshima. And it’s my way of developing a secular perspective—because I remain secular—that takes into account some of the insights that have been developed in relationship to death, but also in relationship to what is thought to be immortality or some kind of afterlife.
My approach is a natural one. It’s never supernatural. But what I’ve learned is that the mind and the brain are extraordinary instruments that, in extreme situations, can go places that we find hard to imagine.
DK: You have been exposed to a great deal of death imagery not only through your research in Hiroshima, but with Vietnam vets, Nazi doctors, and other research you’ve done. What do you think drew you to this kind of work and to these questions?
RL: It’s not easy to answer that question, and I don’t think there’s any single characteristic or single experience that drew me to these events. I hadn’t probed the issue of death and death symbolism until my Hiroshima study, and I came to my Hiroshima work through a certain kind of activism leading to scholarship, rather than in reverse, as we usually think about it. It was through my exposure to a group called the Committee of Correspondence in Cambridge [MA] led by David Riesman in the late ‘50s. He was an early antinuclear academic, a sociologist who probed ways in which nuclear weapons were harming our society and our social institutions.
It was because of him and others in the group that when I was in Japan subsequently in the early 1960s to do a study of Japanese youth, I decided to make the trip to Hiroshima.
I was stunned to find that nobody had ever done a comprehensive study of that first atomic bomb. I developed a principle, which may not always hold up to scrutiny, that the larger a human event, the less likely it is to be studied. It’s difficult to study large events, and we don’t like to get out of our comfort zone, which a study like that certainly required.
I was then just beginning my chair at Yale and I was able to work out with the chairman of my department an arrangement to stay on in Hiroshima for six months to do the study. But it was the exposure to activism that led to the scholarship, and then I tried to do the work very systematically through interview methods in a modified way. The book I wrote from that study, Death in Life: Survivors of Hiroshima, was my scholarly contribution to antinuclear activism.

Combining Scholarship with Activism

DK: You say in your autobiography, “I was groping for ways of expressing in my work and in my life deeper opposition to what America was doing and becoming. The sequence involved for me consisted of first outrage, then research to deepen knowledge, and then protest in the form of writing and action.”

Most people don’t associate psychiatry and psychology with activism. Did you feel like you were forging a totally new path? Or were there other psychiatrists doing what you were doing?

RL: I was intent on combining scholarship and activism. I didn’t call it that at the very beginning, but I came to the realization that I wanted to combine them over time. There were a few others doing it at the time and I think there always are people doing it in any given field. I think each of us who tries to combine scholarship with activism does it in his or her own fashion.

There’s great value in obtaining good training for one’s profession, in deeply learning the trade we’re doing and combining that with activism. One can make certain kinds of contributions through professional knowledge that enhance activism in a way that contributions without that professional knowledge wouldn’t be able to do.

There are always some people, however few, who can look critically at their profession and yet see value in its tradition. In the case of psychology, as you know, there have been quite a number of very good psychologists who have spoken out passionately in opposing the American Psychological Association’s involvement with torture.

DK: Yes, like the folks at Psychologists for Social Responsibility who kept this in the media and fought against it for over a decade, finally getting a resolution through the APA to remove psychologists from all national security interrogations last year in 2015.
RL: They’ve always been there. And one no doubt has to seek them out and work with them and find ways in both one’s training and in one’s life to combine scholarship with activism. It can be done.

Of course, institutions can be backward and can, as we saw in the case of the American Psychological Association, take dangerous directions. But mostly if one is rigorously combining scholarship and activism, one is not really that condemned and on the whole one is honored for the effort. It’s demanding and it can lead to moments of conflict and difficulty, but it’s also rewarding.

DK: Well, it requires going against the grain, right?
RL: It’s going against the grain of the mainstream, but there is much in cultural experience that goes against the grain of the mainstream. One way of looking at it is that every profession has an ethical dimension as well as a technical one, and it’s a good thing to be well trained in the technical aspects of one’s profession, but not at the expense of ethics.

I was very aware of this in relation to studying Nazi doctors. Some of my friends warned me against doing it because they thought I would simply reduce them to psychopathology and lose sight of the ethical issues. I thought that was a fair warning and decided that whatever I did, I would look to both psychological and ethical elements, never leaving out the latter.

DK: That must have been difficult.
RL: In my work on Vietnam, I talked about the scandalous moment that we reached during the Vietnam War, where the duty of psychologists and psychiatrists was to help soldiers, traumatized by what they were seeing and doing, return to duty and daily atrocities.
DK: That reminds me of the army resilience training that positive psychologist Martin Seligman has been doing at the University of Pennsylvania. Among other things it’s designed to help troops better withstand multiple deployments in places like Afghanistan.
RL: When this was happening in Vietnam, I began to study the history of the concept of “profession.” It was originally a religious concept, a profession of faith, and then with our secular age it became more and more technical. Professions became learning technical details specific to that profession, and that technicization was highly overdone at the expense of the ethical dimension. We need to newly incorporate the ethical dimension to combine it with the techniques that we learn in our profession. That idea has been a common theme throughout my work.
DK: How do you imagine the ethical dimension being reincorporated into training? It strikes me that in the ethics classes that we take in psychology training, often times we’re dealing with thorny individual situations—when to break confidentiality, what’s the best way to protect yourself from lawsuits etc.—but we are rarely taught how to break free from toxic groupthink, how to stand up against immoral ethical transgressions like what happened in the American Psychological Association, how to dismantle unethical systems that might be contributing to the mental illness of the patients we see. We’re not often tackling these larger ethical issues that are deeply wounding and affecting the people we see in therapy. It can feel like a kind of resilience training we’re doing, helping people better navigate an unjust world without tackling the injustice that brings them to us.
RL: I think each of us can question things in the world around us, but there is no perfect answer to this problem. It’s not always possible to combine one’s activism with one’s professional work, sometimes they are things you do in parallel ways. Sometimes that means working with an institution that doesn’t live up to one’s activist principles, one’s activist desires, but I think it’s a constant balance one struggles for within oneself.

In work with patients, even if one doesn’t impose on them a full expression of all that one believes about how the world should be, every patient in psychotherapy has a strong sense of the ethical and political qualities of a therapist.

Even when things are not said. One’s holding to these principles does make its way into the relationship. And, of course, these are things that can be discussed in therapy, though one has to use one’s judgment about that. But I’m not one to give extensive advice about therapy. It’s not an area of expertise of mine at all.

DK: What went into your choice to not become a clinician?
RL: I was trained in psychotherapy and I did some of it early on, but relatively little. I began doing research and I found that the research I did was so involving and I was so intensely bound up with it that I wanted to deepen it and extend it. Doing individual therapy in a way was a distraction from that kind of research. Individual therapy requires one’s presence and a lot of one’s imagination. It’s very demanding and it’s also very satisfying. I felt its demands and I even enjoyed it, but I really preferred to develop the research, which I did with great intensity, and that required giving up the work in therapy.

The Nazi Doctors

DK: You’ve written many well-known books, but Nazi Doctors is one of your most well-known. When I read it, I was shocked that you were able to have so much face-to-face time with people I assumed would have been in prison. They had obviously perpetrated or witnessed a great deal of atrocity, some were still Hitler enthusiasts, and they were just living life in post-war-Germany like everything was dandy.
RL: It was the most difficult study I did. It was hard to sit down with Nazi doctors, you’re right. Most of them were not fanatical, but they tried to present themselves to me as conservative professionals who had experienced pressures during the Nazi era and tried to handle them as well as they could.

They knew I didn’t accept that self-presentation, but I worked from a standpoint of probing them and constantly asking questions and then asking more questions rather than confronting them and calling them evil or anything of that sort.

What happened in general with most of them was that they were surprisingly ready to talk to me, but behaved as though that person during the Nazi era was somebody different from the person sitting with me in the room, and that he and I were talking about that earlier figure as a third person—a kind of extreme dissociation.

I studied as much as I could about the particular person I was talking to, what people in his situation with the Nazis actually did, so I had a considerable knowledge of the context in most cases before I even sat down with them.

There were one or two who remained ardent Nazis in a way, but mostly they didn’t. Still, it was very uncomfortable and partly I could manage it because I knew I would have my say in the book I would write. And I deeply valued the research enterprise, its potential to say something that other studies of Nazi behavior couldn’t say.

DK: I researched those studies for my dissertation, particularly Stanley Milgram’s studies on obedience around the same time that Hanna Arendt was writing for The New Yorker about Adolph Eichmann’s trial in Jerusalem, both of them coming to the conclusion that normal people can, indeed, commit atrocities. It was a big scandal to say at the time that Nazis were human beings, not monsters. Were you worried that your work would humanize them too much?
RL: Some people were worried about that. But, you know, they were human and that was the problem. They were human beings. They were human beings who did evil things.

Evil things are only done by human beings in my view, not by god or by the devil, but by fellow human beings. And in that sense, yes, I had to encounter all of their sides. Not humanizing them to the extent of leaving out or negating their evil, but rather recognizing and trying to probe ways in which human beings are capable of evil, or what I came to call the psychological and historical circumstances that are conducive to evil.

DK: What you call, “atrocity-producing situations?”
RL: Yes, atrocity-producing situations are those in which ordinary people may be socialized to evil. They come to belong to a group in which the norm is destructive—murderers in Auschwitz, let’s say. Or even in Vietnam. And since we are social animals and we all belong to groups, we never work totally in isolation intellectually or emotionally. If one enters into a group which holds an ideology of genocide or mass killing, one tends to internalize much of that ideology. That is a way in which human beings carry out evil projects and, of course, do so as human beings.
DK: Was one of the difficulties of doing this work that you could sort of imagine yourself in their shoes?
RL: One has to wonder that. If I had been a German, would I have done some of the things that they did? I wouldn’t necessarily condemn myself and say I would have, but one has to ask oneself that kind of question. And one has to also come to value, as I did, those who opposed the Nazis. For instance, I became a friend of two of the few psychoanalytic heroes I know of, Alexander and Margarete Mitscherlich, a husband and wife who were anti-Nazis and were part of the underground during the Nazis era at great risk. He reintroduced Freudian psychoanalysis into Germany after the war and was the first to expose, on the basis of the Nuremburg medical trial, the deeds of Nazi doctors.

I also met Jewish survivors of Auschwitz who had managed to remain healers while in Auschwitz. So there were people one could admire in those extreme situations and one could at least hope that one would have been among them, should one have been exposed to that sort of pressure. But who can be sure?

DK: Do you hope through this kind of research to prepare people to be among the helpers, the healers?
RL: Yes, the research is very much meant to expose the destructive behavior, the killing, and assert its opposite, the healing. In all of the studies I’ve done, I’ve looked at the alternative to the extremity of behavior that I was studying. Even in my first study of Chinese thought reform, which applied great pressure in coercing change in people, I had a long concluding section on what I called “open personal change.” All of my work is in the service of openness and healing and ultimately justice, even though—or particularly because—it studies the opposite.
DK: Do you think that people who deny their own darkness are more likely to act out in evil ways?
RL: I think we all have a potential for destructive or evil behavior. When I completed my work on Nazi doctors, people would say, now what do you think of your fellow human beings? And most people expected that I’d completely lost my faith in humanity, but what I said was, “We can go either way.”

I haven’t lost my sense of possibility in human beings. And, yes, we do have a potential for destruction. Somebody wrote a book called We Are All Nazis and I didn’t like that kind of approach because it ceases to make distinctions. Having the potential for evil is very different than actually engaging in evil behavior. But we all have a potential for destructive behavior and it’s well to look at that.

I think that the relationship to ideology and groups that form around ideology has a lot to do with which direction we take. By ideology, I mean idea structures that have intensity and which explain aspects of the world to us. This is something we all engage in, even though we Americans like to think we’re non-ideological. The kind of idea structures we embrace and the groups that we immerse ourselves in have a lot to do with which aspects of the human potential we find ourselves expressing.

DK: Is your concept of the “protean self” a counter to this more strictly ideological way of being?
RL: Well, the protean self is a counter to the more rigid, fixed self and to the totalistic tendencies that I am averse to or even allergic to. The all-or-none kinds of totalism that I studied and wrote about in my first study of Chinese thought reform in particular. What I found is that the reverse of totalism is a kind of proteanism, which has surprising capacity for change and transformation and for a multiplicity of elements in one’s character or personality. This has its vulnerabilities, too, but at least means that we needn’t be stuck in totalitarian dogma. To the extent that we are protean, there are constant opportunities for new beginnings.
DK: Does it mean just being a flexible, open person?
RL: Yes, it does, but also more than that. It’s consistent with flexibility and openness, and a capacity for change and transformation.

Apocalyptic Violence

DK: In your book, Destroying the World to Save It: Shinrikyo, Apocalyptic Violence, and the New Global Terrorism, you do a study on the Japanese cult that released sarin nerve gas in the Tokyo subways. We’re certainly living in a time of apocalyptic violence and I’m wondering what your study in this book has to teach us about it more generally.
RL: The Japanese cult, Aum Shinrikyo, was notably apocalyptic. The guru and his close disciples believed passionately in the end of the world, and in actively contributing to that end. It was an example of what the ancient Rabbis called “forcing the end.” I write of an ancient rabbinical dialogue about whether it’s correct for people, for rabbis, to advise joining in the violence to force the end of the world and help bring about the appearance of the messiah. The rabbis decided against it, saying that only god kept that timetable.

But some of the most extreme groups do embrace violence to bring about the end of the world, as did Aum Shinrikyo. And there are certain American right-wing groups that have that intent, who have tried to destroy the government through acts of violence, and contribute to an apocalyptic vision, as well as to forcing the end.

But there’s also a lot of apocalyptic thinking in this country without necessarily resorting to violence. There are confused, highly fundamentalist groups in America with an element of apocalypticism who, for instance, deny climate change. They say that only god could change the climate, that it would be impossible for human beings to be responsible for it. And some of those people are in the mainstream of American political life in the Republican Party. That’s a fundamentalist approach that can also be apocalyptic. It isn’t necessarily violent, but it can be highly dangerous.

DK: Do you think that the war on terror, particularly as it was waged by George W. Bush, had elements of apocalypticism in it?
RL: Yes, it did. I wrote about this in my book, Superpower Syndrome: America’s Apocalyptic Confrontation with the World. George W. Bush saw it as a war against evil and that takes on something close to an apocalyptic tendency. To destroy evil is to create an endless war against an enemy that can never be destroyed. It also is to polarize the world into one’s own good and the evil of the other. It’s that tendency that we’re seeing now with regard to terrorism.

Terrorism is real. And ISIS is a real danger. And it’s a highly apocalyptic and murderous movement. But there’s a tendency among some groups in this country to view it the way that communism was viewed in the past as absolute evil in contrast to our absolute good. That radical polarization of the world is enormously harmful and can feed violence ultimately rather than diminish it.

DK: Is that the kind of historical issue that you bring your psychological methods and moral complexity to, for purposes of understanding the “other”?
RL: That’s right. Moral complexity becomes extremely important. That’s where we psychologists and psychiatrists can have something to say.

Climate Change and the Nuclear Threat

DK: Right now you’re working on a book about climate change and you are also making a connection between the antinuclear movement and the climate change movement. You basically never hear about nuclear proliferation these days and I’m wondering why people aren’t more freaked out by it. To my knowledge, the world’s arsenals have only gotten bigger.
RL: Yes. The nuclear threat is still very much with us and there are people who are saying this, but it has lost its visibility in a larger society. So there’s a gap between mind and threat. During the ‘80s, the heyday of the antinuclear movement, when there was the million-person demonstration in Central Park and the nuclear freeze or moratorium, there was a certain amount of fear that was useful. And there was a closer relationship between mind and threat.

I don’t equate nuclear threat with climate threat, but I look at the nuclear threat and the antinuclear movement for both parallels and differences in order to think more critically and understand the challenges of climate change.

They both are realities that threaten the human future; they both have world-ending possibilities—yet they both are movements that the human mind is capable of addressing. We haven’t figured this out in time to prevent enormous amounts of suffering because of climate change, and there’s a great amount of work that has to be done even to limit that suffering. Nonetheless, there is a demonstration of what I call “formed awareness” about the nature of climate change that has great value to us because it’s the basis for anything constructive that we do in that area.

DK: But there’s not that sense of imminent crisis that the threat of nuclear war gives us.
RL: The comparisons are complicated because, yes, there’s something about a bomb—it’s an entity, it’s a thing that explodes and destroys a city. We saw that in Hiroshima and Nagasaki and I’ve experienced it viscerally by studying it in Hiroshima. Climate doesn’t do that. It’s a slower incremental series of changes, but what’s changed now in relation to the climate threat is that it’s become more active. We’ve had hurricanes and floods—
DK: Super storms.
RL: We’ve had coast lines being destroyed. It’s closer to us. The gap between mind and threat is narrowing. Climate change has become not just something that will become much worse in the future—it will if we don’t do more about it—but also something that’s now affecting and threatening us in profound ways at this moment. So, that distinction between the two is still there, but it’s lessening. And climate change is closer to us as a real threat.
DK: Well thank you so much. This has been such an interesting conversation.
RL: You’re very welcome.

What Remains: The Aftermath of Patient Suicide

Note: Clinical material in this article is taken across various venues and years of treatments. Identities are disguised to protect confidentiality. References used in writing this article, as well as resources for clinicians, can be found at the bottom of this page.

Silent Mourners

The memory is quite clear: several years ago, early one morning checking my voicemail, two messages in I came upon a message from my patient, Jill. The message was date-stamped the evening before. She said she would miss today’s session due to a need to find new housing; she thanked me for our work thus far (as she frequently did, sometimes out of social politeness or her fears of abandonment, other times out of sincere heartfelt gratitude, something we frequently explored). This time her gratitude sounded heartfelt in tone. Her message also left me perplexed, as we had not talked of housing, and I saved it. Another message, left moments before I checked my voicemail, was from Jill’s psychiatrist, Brian, asking me to give him a call when I got in the office. Brian and I spoke frequently of Jill, her ongoing medical decline at a relatively young age, and her persistent depression and posttraumatic stress. We followed her carefully, exchanged perspectives, and possessed mutual respect for one another’s clinical skills.

I called him immediately. “Are you in your office?” he asked, his voice ominous.

“Yes,” I replied, feeling my stomach tightening.

“Are you aware of the events related to Jill?”

“No,” my heart now pounded from my chest into my throat.

“Jill killed herself by handgun . . . “

I do not remember what he said next, just that he was still talking. I gasped, crying, while simultaneously attempting to hide my upset.

“Margaret, there was nothing, nothing you could have done to prevent this,” Brian continued, his voice clear and emphatic, speaking from his decades of experience, his knowledge of Jill, and his knowledge of our work together.

We talked for some time, and I could feel myself wanting to hang up the phone and be alone, but Brian insistently kept me on the line, wisely, for forty-five minutes. That was enough time for both of us to begin feeling the immensity of Jill’s death, and to begin the longer process of inquiry and reflection into her suicide and its after-effects. It was a process that would continue for a few months between us, and for more than a year for me.

Clinicians who lose patients to suicide are sometimes referred to as “silent mourners.” Some describe this kind of grief as disenfranchised. For me, I think of this grief as a kind of lived experience that catapults you into another environment which is foreign and therefore scary; a kind of grief that is uniquely solitary to bear and therefore devoid of larger community to bear it with you; a kind of grief that is intensely intertwined with shame; and a traumatic grief that possesses all the hallmarks of interpersonal trauma, whose impacts often continue reverberating long after the initial shattering experience has occurred. All of these facets and more underscore the particular experience of clinicians grieving suicide loss.

The differences are rather key in understanding how to be with our selves and also how to respond to colleagues who experience this kind of loss personally or professionally. My hope in writing this article is to buoy understanding, widen the circles of support for clinicians who have experienced suicide loss, and to offer some guideposts along the way of grieving. This topic and these aims are one of my life-long passions in my career. I have had the unfortunate experience of surviving two siblings’ suicides, the sudden death of a third sibling that suggested passive suicide, and the deaths of both parents from organic causes that were informed by these traumatic losses. My terrain of grief and traumatic loss was quite familiar to me by the time I met Jill, having traversed its intricacies in feeling, thought, and body using psychotherapy, meditation, long-distance hiking, body work, and writing, for many years. My experience served me well in working with Jill while she was alive, as well as holding what remained after her death. I was and am, after all, a wounded healer, meeting her suffering in life and in death.

Our Privileged Intimacy, Our Private Mourning

By its very nature, psychotherapy is a privileged space. The therapeutic relationship is characterized by a unique emotional intimacy with each patient. As therapists we are honored by our patients’ presence, the trust that is hard won, and the growing capacities through the course of psychotherapy we witness. We accompany and guide, inquire and curiously explore in a most particular way with each patient. With each patient, a slightly different relationship forms. We are slightly different therapists with each patient we encounter.

The extent to which we as therapists may deny the singular relationship with and presence of our patients in our lives contributes to the complications of grieving their departure in any form—from treatment termination to physical death. In her article, “Necessary and unnecessary losses: the analyst’s mourning” (2000) Sandra Buechler reflects that, because our work asks us to cultivate objectivity, and objectivity is often (over) emphasized in the work (and in training), it becomes a norm without critical thinking or reflection. This clinical cultural norm may also encourage a sense that we can (or should, perhaps) simply “move-on” when a patient departs. A therapist’s stance of distance may additionally complicate the grieving picture, especially in the case of loss by suicide. That stance may feed defenses of denial, encourage guilt, and amplify feelings of shame.

The great Jungian, James Hillman, stated that the suicide of patients is a “wrenching agony of therapeutic practice.” It is also a reality of practice that we fantasize will not touch us, despite the statistics. Depending upon the research reviewed, approximately fifty per cent of psychiatrists and thirty per cent of psychologists experience patient suicide. The statistics are incomplete and varied, often reflective of response rates to inquiry. Further, we do not, to my knowledge, have statistics on the numbers of mental health professionals who have experienced suicide loss within their personal circles of close family-friend relations, but it is fair to consider the percentages may be slightly higher if these were included.

For clinicians, suicide challenges every value we place in the therapeutic endeavor. It can raise fears of litigation, cloud clinical decision-making, and spark feelings of professional isolation. Suicide of a patient can challenge personal and professional identities, career trajectory, and sense of professional security. In its wake, patient suicide can leave posttraumatic stress symptoms behind as well as complicated grief. Interestingly, in my work with therapists who have experienced suicide loss of family or other close relations, they experience similar dilemmas. The sense that as a clinician he or she did not serve their family member or friend well, the questioning of clinical acumen, the guilt of feeling as though he or she should have done something to be of help and more, are common. As clinicians, suicide loss in any arena of our lives is experienced through the lens of our clinical knowledge, expertise, and experience.

There is little personal discussion on how therapists weather such a loss. Lay survivors of suicide are in an unknown country, inhabiting a strange landscape. Therapists surviving the suicide of a patient are in a similar land and yet there are important differences: there is no institutionalized ritual, no community of mourners, no one, really, who knew the patient as the clinician knew the patient. There is no one who witnessed first-hand (as best anyone can) the relationship between a certain patient and a certain therapist, yet the specific dyadic relationship is never to be experienced again. It is never to be remembered by anyone else but the therapist. In specific ways, we are the only one who holds our patient in mind. Even in the case of Jill, Brian held one particular relationship with her, and I another. Although Jill sometimes spoke of us to one another, the bulk of our memories of her are solitary, and the texture of our relationship with her singular.

Therapists are usually left alone with what remains in the aftermath of patient suicide. These remnants include all that was unsaid, unprocessed within the therapeutic relationship—both the regrets of what was not named and processed that are possibly linked to the suicide, and certainly all that had no chance to be felt and spoken of together that more time would have provided. Additionally, all that the therapist retains of his or her patient remains inside the therapist’s memory.

Further, who the therapist was with this particular patient is lost. This leaves open the question of who we are as therapist now. The process of mourning for therapist-survivors asks that we delve into the question of who we are now that our patient has left in this self-destructive way. And who are we, as therapist, the one here to facilitate healing—to engender life, if we have that kind of perspective—in the face of chosen death?

It can be alluring as the therapist-survivor for all these reasons to move far from the confusing thicket of feelings left by patient suicide. The cultural context and identity as therapist can encourage this moving away from honest reflection and processing too. Yet as we know with our patients, moving away from the real experience of the here and now can lead to a dulling of living, a numbing. In our work, moving away from our feelings can feed psychotherapeutic cynicism, burnout, and depression. It can also lead to problematic clinical decision-making and ethical lapses in judgment.

Our willingness to open, receive, and make contact with our patients within the therapeutic work is an offering toward healing—if we choose to risk it. From a relational perspective, certainly, our willingness in these ways is a vital vehicle in the process of transformation found within the therapeutic endeavor. Upon the suicide of a patient, it is tempting to shut down in response to profound relational loss and loss of the therapeutic framework upon which we rely.

Being with Groundlessness

“The dead leave us starving with mouths full of love,” the poet Anne Michaels writes. Jill left me starving and full. Her message to me left me full. The timing of her departure left me starving, questioning. She left me loving her, yes, but also left me with a myriad of other feelings including meaninglessness, impotence, frustration, and raw sadness. I was, because of my life experiences, immediately aware that I needed to take seriously the particular kind of loss I was experiencing—the loss of an incomplete, torn-apart relationship, the loss of who Jill was to me, a loss of clinical voice, and the loss of who I was as a psychotherapist with Jill.

There is ineffability—an unspoken quality— in this kind of traumatic loss. Psychoanalyst Ghislaine Boulanger distinguishes between child and adult onset trauma, noting how core self experience and self-in-relation experiences are undermined. Adult onset trauma shatters illusions of omnipotent control, ever-shaking the normative expectation of personal agency and healthful denial of omnipresent mortality. The suicide of a patient shatters illusions of therapist omnipotence, shaking expectations of potential positive influence upon patients, and calls into question core identity as well as identity-in-relationship to other patients and colleagues.

Western psychology rests within a worldview of personal agency. It is a worldview imbued with Euro-American, individualistic, educated, and moneyed values—all of which are crushed in the face of adult onset trauma. It is the very nature of this kind of traumatic loss that it rocks our assumptive world as therapists: questioning whether our endeavors are life giving, whether our efforts possess meaning and influence; and whether our chosen profession is worthwhile.

There was Todd, a patient-therapist in my practice who came to me after his long-term patient completed suicide. Todd had fifteen years of clinical experience and before that eight as a university professor. He was well versed in suicide prevention and intervention. “After his patient’s death, he refused to ever work with a patient again who even mentioned suicidal feeling states; he would refer them.” His stance is maintained to this day, six years later. His way of coping is not unusual among therapist-patients in my practice or across the profession. Whenever I present a paper on this topic, I hear stories of mental health professionals at all levels responding similarly. So understandably haunted, they desire to avoid any chance of experiencing a suicide loss again; some believe they can no longer objectively assess risk; and others feel traumatized, unable to clinically engage with a patient experiencing suicidal ideation or self-harm.

There are some other common coping approaches among therapist-survivors. They include all the ways we may become vigilant in our practice: taking numerous, even if repetitive, trainings on ethics and suicide prevention; developing a rigid stance in responding to patients expressing suicidal thoughts or intent; and intervening in overly-conservative ways that communicate anxiety to the patient rather than clinical engagement. In her essay for the collection, The Therapist in Mourning: From the Faraway Nearby (2013), Catherine Anderson describes these kinds of responses as part of the working through process with “a desperate need to understand what had happened and a magical wish to protect [oneself] against any future vulnerability.”

Another common response is to avoid examining clinical missed opportunities and errors, to defend against the pain, shame, and perhaps guilt that are simmering. Gina, a patient-clinician of mine, experienced a patient suicide after two sessions. When the patient did not show to the third session, Gina called. Subsequently, the patient’s father contacted Gina. He told her his son killed himself the day after the second session. It was excruciating for Gina to slowly begin to examine her state of mind during the sessions. She came to realize that she was, due to many factors, defending against making genuine a connection with this patient, and was more distant than usual. Her past clinical experience told her that when she has that kind of response, she hesitates exploring avenues that would be productive, and that she overlooks what later, when less defensive, was there all along. That was her missed opportunity. Of course, there is no telling if Gina had been less defended if that would have made a difference—given her a vital piece of clinical information that she could capitalize upon to then help the patient. It was crucially important, however, to Gina’s healing process to bring into consciousness what she already actually knew about herself in her brief work with the patient.

The ground of my being was continually moving beneath me after Jill’s suicide. Because of my life history and my working with it in therapeutic ways, I knew my footing could be regained, but I questioned when that would happen. I returned to writings that reminded me about how vulnerable groundlessness really is and how inevitable it is as well. Pema Chodron, in When Things Fall Apart, writes:

“[T]hings don’t really get solved. They come together and they fall apart. Then they come together again and fall apart again. It's just like that. The healing comes from letting there be room for all of this to happen: room for grief, for relief, for misery, for joy."

Her perspective, for me, reflects what I believe and practice in my private and professional life, but can easily forget in times of great tumult. It is a kind of perspective that provides me refuge.

I knew from my history that if I refused to directly experience what was present within me I would only harden my heart. Cutting myself off by armoring my heart would negatively impact my relationships with other patients, let alone the relationships in my personal circle and my relationship to life itself.

The practice of mindfulness meditation is one way I engage my direct experience, and it had been a practice of mine for many years before I began my clinical work. I returned to intensive practice after sustaining the many family deaths in quick succession aforementioned; I spent a month on a silent meditation retreat as well. The amount of silence offered was an integral experience for my body, heart, and mind to begin having room to feel through those traumatic losses. With Jill’s death, I returned to steady meditation practice again, in order to create room inside myself for the range of feelings I was experiencing. It sounds, perhaps, so simple, so easy, and yet it is not. Silently meditating twice daily confronted me with every vulnerability, every feeling, body sensation, and thought I possessed. Profound shame, futility, anger, banality, and sorrow as well as heartache and headache were some of the many storms I weathered sitting quietly on my meditation cushion. Yet it was the silence and the generous observing accompaniment to myself that were central in my finding footing again.

Ritual as Scaffolding

James Hillman suggests that in the face of patient suicide the clinician go into the context of the death—not to stay on the surface. His advice speaks to delving into our interior world, and grieving, but also something more. He suggests lending all of our knowledge of our patient to the endeavor as well, exploring as thoroughly as possible nuances of our patient’s suicide.

With Jill, intuitively I knew I needed rituals as a frame in my quest to deeply understand her suicide to the best of my abilities, as well as to mourn her death and all of the losses accompanying it. One ritual that was obvious was the therapy itself. There are the set days and times of sessions; the usual pattern of entering and exiting sessions with some of their inevitable variability; the parameters of the relationship.

Keenly aware of how groundless I felt, I longed for grounding in the ritual of my sessions with Jill. “I could not fathom scheduling another patient in Jill’s session times. I realized what I wanted was to keep my appointment with Jill. So I did just that: I kept my appointments with Jill for one year.” Sometimes I went to a meditation space near my office for the appointment; sometimes I was in a natural setting. Other times, I spent it in my office. Wherever I chose to spend the sessions, I also was with Jill. Sometimes reading a book of poetry that evoked Jill, or intentionally recollecting parts of sessions.

By the second week of appointments with Jill, I began writing during the time. I used poetry as a companion. Sometimes I wrote to Jill, sometimes extemporaneously to the Reader with a capital R. An excerpt follows of one of my writings:

I reviewed notes on Jill I came across; process notes. Notes when Brian spoke with me several weeks ago. There is much that remains unsolved in my heart. And it’s in my heart, especially, that time takes its own rhythm, a time that doesn’t match up with the clocks and the calendars.

It’s sorrow or poignancy, both, being touched by Jill—I’m feeling right now. Knowing I’m not alone, really, in such an experience ultimately—like anyone grieving anything how universal and connected to the everyday human experience this actually is. Paradoxically how alone and singular I feel. Alien among colleagues who have not experienced such a violent loss. A lone mourner.

Jill suffered in body and mind, physical and emotional pain. Her physicality used to be a route to survival as a child and a young adult. Her physicality was already failing her. The grief she felt was so layered and frequently linked to all the losses felt trans-generationally across her family history. And even this doesn’t say all she felt and lived with.

I can and do write circles of theory or case formulation but that is not what I’m desiring here. I feel almost desperate to continue delving into this process with her in this kind of way, unsure of where it is leading.

Strange, I guess, to feel the shock, still, that she is dead. I just know the only way to move with this, through this, to be with it all, is to do what I’m doing. Let it come in words or feelings. Let it come through me, in silence.

Of course, the questions remaining in the aftermath of suicide usually cannot be fully answered, but answering all the questions is not the point of such a process. If there is an aim, it is the recognition that the clinician continues in relationship without her (or his) partner in the dyad. Feeling and thinking alongside that recognition is the heart of the process. Psychologist Robert Gaines would call this the stitching together of continuity our relationship to the dead. Finding a relational home once again. Finding one’s clinical and human voice again.

Other rituals also occurred to me related to mourning, whether a formal memorial or an informal honoring, as well as creating continuity. By the end of the second week of appointments with the spirit of Jill, I realized I needed two additional things: to visit where she died, and to create some kind of memorial. There was no funeral service for Jill; she had no family or close community. Something of our process together needed representation. Something of her treasured symbols shared with me needed representation. And something of our relationship needed representation too.

Brian drew me a virtual map in verbal description as to where she died. Over the next four appointments with the spirit of Jill, I developed a memorial. A colleague accompanied me on the day that I set, and we drove to the place close to where Brian described. We walked the remainder of the way. Although Jill chose a place where she surely would be discovered, it was not an overly exposed public place. When I got there, I wept. I wept not because of her death in that moment but because of the purposefulness of the place. I recognized it, immediately, based on our work together. Based on what Jill shared with me. I could see how Jill, with her particular perspective, felt beauty in this place. The place fit into the story of her life, the story she shared with me. The story we made sense of together. The place symbolized what she would frequently discuss and feel, the existentials of existence, and the evolution of her life.

The ritual included flowers, some writing I read to commemorate Jill, and a prayer combined with poetry I put together to reflect our relationship. My colleague and I sat in silence afterward, listening to the sounds around us. I felt close to Jill in the moment. Through the scaffolding of this ritual, as well as the ritual of appointments with her, I began to understand some meanings in her death, and I regained my voice once again.

Jill genuinely affected me—her life as well as her death. Destruction, and particularly self-destruction, surrounded her in the history of her life yet she developed into a highly deliberate, aesthetically-minded, symbolically-attuned woman who struggled with looming thoughts that dragged her into familiar mire she was accustomed to escaping by vigorously and creatively using her body, no longer available to her. Her suicide was equally aesthetically minded—if you forgive the stretch of the word in this context but rather feel into the contour of its meaning. I noticed this in numerous ways from the evidence she left behind, the chosen place of her death, the timing of her death, to her message left for me.

I was acutely aware in working with Jill of my family standing with me, for they are there, always, in the background of my mind and heart, like a luminous shawl. How the experience of their tragic, violent, and sorrowful deaths created, initially, a nuclear-sized crater within me that since healed—and continues to evolve in healing—with scarred but incredibly strong layers. Layers of capacity and depth for ambiguity, curiosity, and love in the face of enormous challenge, rejection, and destruction. I never revealed to Jill my personal history, yet I felt it was these very experiences and my working with them, through them, that enabled me to meet Jill in the dark and light of her psyche without collapsing. All of these details and their meaning that I came to understand over time enabled me to continue to serve fully in my life in all ways professionally and personally with openness.

Relational Home for One Another

Clinician-survivors come in contact with the real attachment felt for the person who died in the process of mourning. Regardless of theoretical orientation or therapeutic stance, there was (and is) a relationship. The basis of the relationship is connection, care, and likely love. Therapists may have difficulty admitting they love their patients; some secretly do so with shame as if caring were untoward. When working in my practice with therapists mourning a suicide, moving through the shame of caring to the healing and human quality of caring is vital.

Clinician-survivors ask me to be their therapist initially because they find my contact information from the American Association of Suicidology’s website. There, among numerous resources, is a link to resources for clinician-survivors. Clinicians who contact me often gingerly express their desire for support, understandably fearing an amplification of shame they already are carrying. Shame demolishes a person’s sense of self. Shame isolates and evicts us from our relational home.

Some studies have explored the ubiquitousness with which clinician-survivors are met with judgment and shaming from colleagues. It has been found that clinicians who have not experienced a suicide loss professionally or personally are more likely to assume that there must have been something the treating clinician had done wrong. One way to understand this is to consider the nature of trauma. People involved in the traumatic event, either directly or indirectly (hearing of it, etc.), hold parts of the experience and defend against the emotional enormity of it. Blame, shame, grandiosity, omnipotence, and guilt are often convoluted in the mix. Unbearable feelings are projected or disavowed. Most of us “know” this, but when we are in the midst of it ourselves we can forget.

Before I entered my contact information on the clinician-survivor network, I carefully considered this act—a public acknowledgment of an aspect of my history. Before I agreed to write this article, which is drawn from a public presentation I gave to two different professional organizations, I considered how my history in print felt quite different than speaking it. I sensed the risk I felt in both instances. For me the risk is primarily located in relationship to colleagues unfamiliar with suicide loss. My feeling of risk among the professional community is not singular—it is cited repeatedly as a way that therapists feel shame for their grief in relation to patients generally, and most especially the shame felt when a patient completes suicide.

Coming out, so to speak, on the website and in this article are acts of advocacy for other therapists in a direct way, and ultimately also, I believe, advocacy for patients. Coming out in these ways are antidotes to shame as well, although revealing oneself carries with it a chance of being judged or shamed. Hiding when feeling shame, after all, is a protective solution to those risks—albeit risks that are generalized. Two anecdotes may elucidate.

When a psychologist-colleague found out that I publicly acknowledged my identity as a suicide survivor, he questioned me. He wondered if I were exposing something that “should” be hidden. His sense of hiding was initially justified by the importance of neutral stance and limited self-disclosure. With further exploration between us, however, my colleague came to realize that he felt anxious and even dissociated when hearing about my experiences. His shaming reaction toward me was a coping mechanism for his anxieties.

Another colleague responded quite differently to finding out about my public acknowledgment as a suicide survivor. Her response: There but before the grace of God go I. She too felt anxious hearing my experience, but she remained in communion with me. She shared her anxiety and her wishful fantasy that she would never experience this kind of trauma. Through our discussion, we created a relational home for one another.

In therapy, we create, with our patients, a relational home. While this home is focused on the patient’s needs, it is irrevocably the particular home we live in with our patient. That home continues to live inside of the therapist-survivor after the patient dies. In Trauma and Human Existence: Autobiographical, Psychoanalytic, and Philosophical Reflections (2007), Robert Stolorow writes, “The mangling and the darkness can be enduringly borne, not in solitude, but in relational contexts of deep emotional attunement and understanding.” The loss of a patient or a loved one by suicide is unfathomable, though we know it happens. It is nothing short of a cataclysmic trauma, one that is enormous to digest. The impact of it on clinicians has been compared to the traumatic loss of a parent. It is a leveling experience for it takes us out of our protected role as therapist and throws us into the most humble, bare experience of our own humanity.

Brian, the psychiatrist, only learned of my family history after Jill’s death. He wondered, “Perhaps there is some unconscious way Jill knew you could make meaning of and bear her death.” It is curious whatever Jill may have implicitly known of me—but ultimately that is something I will never know. Importantly, it was not lost on me, her therapist, the relevance of the place she chose to die. What it meant to her, what she communicated to me in her final message, and what she communicated in her choice of place. It was not lost on me, her therapist, the layered meanings in the timing of death. The curious exploration of these among other unspoken aspects of our work together was what I gave voice to in my year of kept appointments. A year of rediscovering meaning. A year of regaining clarity, ground, and clinical voice. A year of examining the soul of the process between us, and what lived on within me.

***

Following is a list of readings and resources for clinicians and clinician-survivors who wish to learn more about, and seek support for, the grief of losing a client to suicide.

The clinician-survivor network of the American Association of Suicidiology provides consultation, resources, support, and education to mental health professionals in the aftermath of suicide loss, personally and/or professionally. The website includes nationwide clinicians available as resources, as well as an extensive bibliography.

Anderson, C. (2013). "When what we have to offer isn’t enough" in Malawista, K. and Adelmari, A., Eds. The therapist in mourning: from the faraway nearby. New York: Columbia University.

Boulanger, G. (2002). Wounded by Reality: understanding and treating adult onset trauma. New Jersey: Analytic Press.

Buechler, S. (2000). "Necessary and unnecessary losses: the analyst’s mourning." Contemporary Psychoanalysis 36: 77-90.

Chodron, P. (2000). When things fall apart: heart advice for difficult times. Boston: Shambhala Publications.

DeYoung, P., (2015). Understanding and treating chronic shame: a relational/neurobiological approach. New York: Routledge.

Gaines, R. (1997). "Detachment and continuity: the two tasks of mourning." Contemporary Psychoanalysis 33(4): 549-571.

Hillman, J. (1997). Suicide and the soul. Connecticut: Spring Publications.

Michaels, A. (1997). Memoriam in The Weight of Oranges / Miner’s Pond. Toronto: McClelland & Stewart.

Plakun, E. & Tillman, J. (2005). "Responding to clinicians after loss of a patient to suicide." Retrieved December 2013 from http://www.austenriggs.org.

Stolorow, R. (2011). "Portkeys, eternal recurrence, and the phenomenology of traumatic temporality." International Journal of Psychoanalytic Self Psychology, 6:433-436.

Stolorow, R. (2007). Trauma and human existence: autobiographical, psychoanalytic, and philosophical reflections. New York: Routledge.

Tillman, J. (2006). "When a patient commits suicide: an empirical study of psychoanalytic clinicians." The International Journal of Psychoanalysis, 87(1), 159-177.

 

After the Diagnosis: Helping Patients Cope With their Emotions

The New Normal

“I just got diagnosed. Now what do I do?”

The focus of my professional work is on helping patients to cope with medical diagnosis, so I hear this question a lot. But many psychotherapists tell me that their patients also talk to them about their health issues, including sudden, serious medical diagnoses.

As mental health professionals, we may provide the only opportunity that newly-diagnosed patients have to talk to someone in this situation. The traditional medical establishment is equipped to help patients from a medical, but not an emotional, perspective. Family members and friends are also suddenly thrust into the emotional chaos surrounding the diagnosis, and often need help with their own emotions and helplessness.

Our patients facing a medical diagnosis look to us for help in sorting out complicated and scary feelings during a highly stressful time so that that they can move forward in their lives. In this regard, our job is to help patients define and embrace a “new normal” —with a positive self-image, retention of as many cherished routines and rituals as possible and supportive relationships—but also help them to integrate the effects of treatment and make ongoing lifestyle adjustments. Patients facing a diagnosis want nothing more than to be as normal as possible.

If newly-diagnosed patients are able to get needed emotional support early on in their diagnosis, they will be that much better prepared to cope as they move forward with their treatment. As therapists, we help them to prepare for the road ahead.

Medical Diagnosis=Stress

Receiving a catastrophic medical diagnosis is a stressful and sometimes traumatic event. Newly-diagnosed patients feel an immediate sense of uncertainty—life will never be quite the same. And life may end. And like other stressful events, our minds and bodies are hardwired by nature to react. The initial reaction is shock, as our conscious minds essentially shut down while, subconsciously, this information is processed.

As the shock fades, it gives way to one of three reactions that occur in response to stress: flight, freeze, and fight. The flight response is primarily an emotional reaction, and patients may be so caught up in their emotions that they may not be able to make objective decisions regarding their condition and its treatment. On the other hand, those having a freeze response may be unable to acknowledge their feelings at all or may have a fatalistic view, either of which may result in inaction. Those in fight response are best equipped to deal with a new diagnosis. They have access to their emotions as well as their logical resources, and are able to harness both as they face their illness. Most important, patients can be taught how to be Fighters.

These basic reactions impact the kinds of emotions that newly-diagnosed patients experience, and how they cope with these emotions, as well as how they deal with their diagnosis from a rational standpoint (e.g. information-gathering). For better or worse, how patients cope during those first few days and weeks after receiving the diagnosis will have implications throughout their treatment process—from decision-making to coping with the treatment to ongoing recovery and life management. And if those patients find their way to the office of a mental health professional, we can play a formative role in their journey.

The First Reaction

Whether catastrophic or chronic, almost invariably patients describe their reaction with one word: shock. People often experience numbness, as if they are in a trance, or simply have “no feeling at all.” The experience of shock is often associated with disbelief or a sense that their emotions might be so strong that they should be held at bay for fear that they might be overwhelming. There are of course exceptions. For example, when a condition from the past is recurring, or when symptoms over time have rendered the diagnosis inevitable, patients may report an initial feeling that “the other shoe has finally dropped” or that they are about to go down a road that that they have previously been on. Still, it is only human nature to cling to that possibility that “it won’t happen to me.” This belief is mainly unconscious; after all, most of us don’t spend our time assessing our chances of getting hit by a medical diagnosis.

Carole described her reaction when she was first diagnosed with cancer.

"It was like the world suddenly stood still. I mean, all I could hear was my own breathing, and the thumping of my heartbeat. At first, I was completely numb, and I wasn’t thinking anything. And then I started saying the word “cancer” over and over. Still, no feelings. But deep inside, I realized that, no matter what, my life was never going to be the same."

The initial shock may last a moment, hours, days, or may continue on, as the patient’s emotional and rational sides are both struggling with the news. If you have been through the experience of a diagnosis, you might remember how you first reacted, or didn’t react, to the news; or maybe you have seen someone else go through it and felt your own helplessness as you watched them struggle.

In a way, being faced with a diagnosis, while not usually a death sentence, is similar to hearing about a death. As Carole, in the example above, described her diagnosis—nothing will ever be quite the same. Newly-diagnosed patients are left with the knowledge that, yes, bad things can happen, that they really aren’t invincible after all. And the diagnosis —whether it requires extensive treatment that interrupts normal life for months or longer, or whether it requires medication and alterations in diet and lifestyle—will at some point require the patient’s acknowledgement and full attention. Knowing that this looms ahead can also be initially overwhelming for the patient, and the healthcare professionals they are working with may or may not be able to provide emotional support for their patients.

During this time of initial shock, patients are often not open to more information, nor willing to discuss their diagnosis and what it means. It is difficult to communicate with patients who may be unable to hear or comprehend what they are being told, which presents a particular challenge to their healthcare providers who may need to begin a medication regimen and/or make a decision about the path of treatment. The newly-diagnosed patient may need some time and space to sit with the news, and if the healthcare professional pushes them too hard to discuss the treatment plan or to make a treatment decision during this time, the patient may become defensive and refuse to talk further, potentially becoming even more resistant.

Patience is required. Human beings can’t be forced to take in more information than they can process at any given moment moment, and often the best way to help patience move through this early stage is to be willing to sit with them, offering support while being sensitive to the readiness of the patient to process this news. Psychotherapy can provide vital support during this time, a chance to vent about the frustrations and the fears.

Clearly, sensitivity to how a patient is responding must be balanced with the level of urgency in taking any necessary action. For example, it may be appropriate for the therapist to act as a patient advocate by encouraging the patient to schedule a follow-up appointment with their healthcare provider to further discuss the diagnosis and formulate his/her questions. And even to help the patient formulate a list of questions to ask their healthcare provider. Scheduling a follow-up session with the patient to discuss and process what they learned in this second appointment can also be invaluable.

The Three Fs

Accepting that life is going to change is the first step toward coping with the emotional impact of the diagnosis and making decisions. Though newly diagnosed patients come to this realization differently and at different times, most patients fall within one of the fight/flight/freeze responses.
 

Fight Freeze Flight
Positive Thinking Isolation Empowerment
Rigidity Helplessness Emotional Coping Skills
    Rational Thinking

Flight: The Case of Dave

The best way to introduce the Flight response is through a case example of a newly-diagnosed patient I’ll call Dave. An active man without a history of health problems, his diagnosis of a heart condition took him totally by surprise. His physician presented him with what she thought was the best recommendation, which was a triple bypass, and then suggested that Dave go home and do some thinking before making a decision.

Dave later reported that the sense of shock continued not only that evening, but for a couple of days afterward. He couldn’t believe that he, of all people, was being told that he was in anything but top condition. And his heart? Not a chance. He told his wife only that his doctor was watching his heart, but that he was absolutely fine, which of course she was skeptical of but knew better than to push if Dave wasn’t ready to talk. Dave describes the next few days like this:

"”Once the numbness started to wear off, I kind of went into a panic mode. It was like I had this thing around my heart and I wanted it cut out as soon as possible.” I was afraid to think because I was afraid I might talk myself into doing nothing, or that I might put too much strain on my heart. I imagined my doctor as my savior. I wanted to put all of my faith and trust in her and have her direct my path. I was in such a rush, I asked her to call the cardiologist she had recommended to try and influence him to schedule me for surgery as soon as possible"

While Dave is placing all of his trust in the first physician he encounters, he is also running toward the treatment that feels most expedient. He is not considering the implications of the treatment, in terms of side effects, recovery, and ongoing lifestyle management. As a result, he may later discover that this is not a treatment that he was prepared to deal with, which has implications for ongoing compliance as well as dissatisfaction with his healthcare provider.

The flight reaction has other implications as well. Individuals in this state may—out of a sense of panic—run toward unproven alternative treatments with potentially alarming results. They may also be susceptible to the recommendations of healthcare providers with whom they feel comfortable with emotionally but who may not offer the best treatment option. For example, they may profess to “love” their practitioners, which can preclude them from obtaining a second opinion on the diagnosis, investigating treatment options, and at least checking into the credentials and track record of their physician. Patients in Flight reaction may also attach themselves to an unproven, non-medical treatment with potentially alarming consequences.

The flight reaction can also result in such strong emotions that patients are unable to access their logical mind. Excessive crying, expressions of anger, giving in to fearfulness—these responses signify that a patient is also in flight of a different sort—not toward the first available treatment or the most loved practitioner, but instead running away from their diagnosis.

Freeze: The Case of John

Not all patients “take flight” toward the first available treatment. Some don’t take flight at all. Instead, the initial shock gives way to sitting and staring into space, waiting for the nightmare to pass, or for someone, often a family member, to step in and take charge. This is understandable. After all, between the shock of the diagnosis, and their perception that they are unprepared to make the decisions that are suddenly thrust upon them, or that they have no hope, they are essentially immobilized.

When in freeze reaction, emotions appear to stop working, not because they are broken but because they are being tightly held in place. And while this might be an opportunity for the rational side to kick in and take charge of the situation, logic without emotion is not necessarily going to result in rational thinking, as evidenced by John.

"I just sat there when the doctor told me, and I guess I’m still just sitting still. I can hardly get out of the chair, to tell you the truth. I kind of decided to be philosophical about it. I don’t know much about this but I do know that statistically, the numbers are against me. I mean, what can I do when fate isn’t on my side"

John is using the defense that individuals in freeze reaction often adopt: refusing to react emotionally. Not getting actively involved in learning about the condition and its treatment. Unfortunately, this also means giving up.

Essentially, the freeze reaction is an extension of the original feeling of shock, but with some key differences. Shock is the mind’s way of shutting down the emotions, and allowing the brain to process the information, before reaction. Patients in freeze reaction aren’t consciously suppressing their emotions, but their emotions are nonetheless inaccessible to them. They may think they are being “rational” based on their view of the facts, but there are risks involved when the logical mind is operating without the emotions.

Patients in freeze reaction, because they are operating without their emotional side, may adopt an attitude of hopelessness and helplessness. By not allowing themselves to work through the initial emotions, like anger and fear, they essentially remain stuck. Often they refuse to discuss their condition any more than absolutely necessary with their healthcare professionals, and may avoid telling family members as long as possible. Whereas patients in flight reaction may completely give themselves over to their emotions at the expense of rational thinking, patients in freeze don’t acknowledge their emotions, which leads inevitably to avoidance isolation.

One characteristic common among patients in freeze reaction is an unwillingness to make decisions about their treatment. They rely on their physicians, possibly working with family members, to make these decisions for them. In essence, they decide not to decide.

Fight: The Case of Marie

Being open to emotions can result in an inner sense of optimism and hope. If this optimism is balanced with rational thinking, patients are in the best position to make treatment decisions, deal effectively with treatment and lifestyle changes, and otherwise cope with the changes and challenges that may arise as they face the future. These are the fighters.

Fight doesn’t necessarily imply aggression and, in fact, sometimes patients resist this word because of that association. “Being a fighter means being empowered in terms of understanding the diagnosis, the options for treatment, and what lifestyle adjustments need to be made in the near future and beyond.” Being empowered is about arming oneself with emotional coping skills as well as rational thinking.

Fighters acknowledge the feelings that arise as a result of hearing the diagnosis and continue to honor their own emotions. It would even be reasonable to say that dealing with the emotional aspects of a diagnosis opens the door to rational decision making. Fear may, realistically, never fade away. The anger and disappointment may flare up at times. But emotions like fear and anger, when they are acknowledged and experienced, may also give way to hope, optimism, and a renewed passion for life.

Marie said it this way:

"I sat and cried and asked 'why me?' for quite awhile, maybe a few days. And then I stood up and said, 'I am going to fight this beast. I’m not going to let it beat me down.' The next day I made a list of who I needed to talk to, where I needed to go for information, and what I needed to start planning for. That doesn’t mean I don’t feel overwhelmed sometimes, because I still do. But I’m also in active mode."

Marie didn’t hold back on her emotions but, instead, faced her disappointment and fear. She sat alone with her emotions and, in her case, had a good cry. She also discussed her emotional reactions with a member of the healthcare team, who was comfortable being a “listening ear.” Had she not taken the time to experience how she was feeling, she would have been forced to sit with a large block of emotion, and it would have essentially taken all of her mental energy to hold it down. By doing so, she was able to start asking questions and making decisions.

Patients in fight reaction are more prepared to take action with their condition. By working through their emotional reactions—feeling their feelings and expressing them to supportive listeners—they are not running from their feelings, nor are they so overwhelmed by them that they can’t think. The result is a sense of self-confidence that comes from being aware of, and open to, emotions. Fighters also have access to their rational minds. This doesn’t mean that they are in perfect balance every day, or that they don’t have bad days when nothing seems to go right, but they are on the whole able to search for, and process, information. They are more likely to ask questions and to evaluate alternatives. They take more control over their treatment decisions and the ongoing lifestyle adjustments that they need to make.

Their balance of emotions and logic results in an attitude of empowerment toward their healthcare and the individuals who deliver it. For some patients, the fight attitude comes naturally; they may be more temperamentally inclined towards this kind of response to adversity once they move beyond the initial shock. These individuals will sometimes present challenges to their healthcare team, because they tend to be much more active in their own treatment, and believe that the ultimate decisions regarding sources of information, treatment alternatives, and lifestyle adjustments, lies in their own hands. However, the healthcare team can work with patients experiencing freeze and flight reactions to create and enhance fighter skills.

Psychotherapy: Bridging the Gap That Healthcare Professionals Can’t Fill

Healthcare professionals are not expected to be psychotherapists or counselors, nor to deliver direct mental health services to their patients. On the contrary, attempting to counsel patients without the benefit of being a trained mental health professional can be harmful to the patient and risky for the untrained professional. But newly diagnosed patients often have a hard time processing the overwhelming information they are bombarded with by their healthcare providers, and this is where psychotherapy can play a vital role.

Often patients are so flooded with emotion when they first receive their diagnosis that they aren’t really listening to what they are being told; they might “hear” it, but not be able to make sense of it and, as a result, they may miss key pieces of information or misinterpret what they’ve heard. This can be frustrating and alarming for the healthcare professional, who may or may not have the patience or skill to help their patients through this initial phase. Psychotherapy can help the patient to cope with the fear and anxiety that may be preventing them from processing information about their diagnosis and their treatment options, and to evaluate the options from both rational and emotional perspectives.

This can also be a good time to involve family members in the therapy. They often need support as well in processing and understanding the diagnosis, figuring out how best to support the patient, and deciphering what their role will be throughout the treatment process. Both patients and their families and close friends may not yet have the words they need to discuss their feelings and reactions with each other, and therapists can play an important role in helping to facilitate communication between patients and their loved ones.

Newly-Diagnosed Patients in Psychotherapy

A new medical diagnosis brings with it the probability of change—in routine, in relationships, in self-image—and human beings are creatures of habit, not wired to embrace change. Uncertainty about the future and what challenges might soon be presented, fears about loss, including finances, relationships, favorite activities and one’s future dreams are all a part of what the newly diagnosed patient brings to therapy.

Some of the factors that influence the way an individual reacts to a medical diagnosis include:

  • Perceptions of the severity of the diagnosis—Patients often have minimal information about their condition when they first receive their diagnosis, or erroneous information, or a vague awareness of the condition but not enough of the facts to evaluate it in terms of the implications for their own lives. These perceptions —and misperceptions —may lead to an emotional reaction that is not consistent with reality. Alternatively, patients may be well versed in their condition and experience emotions that are realistic and consistent with its severity. Either way, perceptions have a direct influence on emotions.
  • Personal coping style—Some people grow up in families in which emotions are always on the surface, and family members are encouraged to express how they are feeling. In other families, emotions are not so acceptable, and are suppressed. Newly-diagnosed patients who don’t have a history of being comfortable with their own feelings will most likely have difficulty talking about, or expressing, how they feel.
  • Prior experience of illness—Newly-diagnosed patients who have had a past illness may experience some of the same feelings that they experienced in the past. Having already dealt with a medical diagnosis may have provided them with coping skills to deal with a new diagnosis; alternatively, the diagnosis can reignite fears and other feelings that they had hoped not to re-experience. Patients who have helped a friend or family member cope with a medical condition may react similarly.

The Unanswerable Question

Newly-diagnosed patients inevitably ask one question: “Why me?” This may be a medical question, as the patient tries to understand the medical reasons behind the diagnosis, though there is usually an undercurrent of self-punishment—“If only I’d eaten better” or “if only I didn’t smoke” this would never have happened. People may also feel guilty about asking this question, as it can seem to suggest that it would be more fair and right if it happened to someone else. And patients may also express acceptance, but nevertheless ponder the randomness of life.

The point for therapists is not to answer this question. For many patients, “Why me?” opens the floodgate to releasing their own emotions, because it is a way of articulating that basic question of fairness and the role of fate, core issues that patients grapple with as they begin to process their diagnosis and move toward acceptance and empowerment. Ultimately, “Why me? is an existential question, and as therapists, we can use it to delve more deeply into the meaning of life for our clients and, if appropriate, work with them to cultivate a deeper connection to their religious or spiritual communities and practices.

Facing Difficult Emotions

When I first met with a patient I’ll call Yolanda, who had been diagnosed with cancer, she said:

“All I could think about was how concerned my doctor was when she told me I had cancer. I had never seen this look on her face before, and I just kept thinking that if she was this concerned, I must be in big trouble. I felt like I was on the edge of a cliff and I needed to hang on to something but there was nothing to hang on to. And at any second I might go falling into the darkness.”

During the course of our counseling sessions together, I was able to help Yolanda identify the emotions that she was experiencing, especially those that she thought she “shouldn’t” be feeling (I always begin by kicking the positive-thinking police out of the room). I also supported her as she began to deal with her diagnosis on a day-to-day basis, including giving the news to her family, making the treatment decision, undergoing surgery and chemotherapy, and making lifestyle changes. Helping Yolanda recognize, accept, and cope with the emotions around her illness allowed her to move into an empowered fighter position.

Yolanda gave voice to her greatest fears about cancer. As we worked through the “why me?” question, I told her about similar experiences by other patients facing cancer to help normalize her reaction. It’s important for people to remember that they are not alone and that many have walked the path before them. I also encouraged her to arm herself with real facts by asking questions of her treatment team and information-gathering on her own, and at her own pace. Information is an antidote to fear.

As Yolanda faced her fears about her cancer diagnosis, I encouraged her to express other emotions as they arose. Allowing herself to be angry was an important step for her, as she was able to express her frustration at having to take a break from her active life to go through treatment. As she stated, “I want to scream at life and how unfair everything is!” During a later session, as she was beginning cancer treatment, she talked about attending a wellness lecture and leaving feeling ashamed that she “might have avoided this if I had taken better care of myself.” And during chemotherapy, she expressed sadness that she wasn’t able to “be the mother that my kids need me to be.” Yolanda needed the opportunity to express these emotions in a safe, non-judgmental environment so that she could continue to cope with her day-to-day life and responsibilities.

Challenging Harmful Beliefs

As patients react to the stress of their diagnosis, their fundamental beliefs about life are put to the test, many of which, from a Rational Emotive Behavior (REBT) perspective, may be irrational and therefore lead to reactions and emotions that are unproductive and self-destructive. I was able to gently help Yolanda to identify beliefs that resulted in, as she said, “beating up on myself” and “telling myself that I shouldn’t feel the way that I do.” Irrational beliefs common to newly-diagnosed patients include:

  • My life will not change unless I want it to.
  • I must be available to the people who need me at all times.
  • If I live a good life, bad things won’t happen to me.
  • If I don’t keep a positive attitude, other people will think I am a failure.
  • If I don’t maintain control of my emotions I will collapse.

“I can’t emphasize enough the importance of first and foremost being a supportive, listening ear in the true sense of Carl Rogers—non-judgmental, unconditional positive regard.” This is what patients need most when they first get diagnosed. Motivational interviewing techniques can also be helpful in assessing readiness and introducing alternative ways of coping.

As Yolanda was ready for me to move from the role of supporting and normalizing her emotional reactions to examining her beliefs and understanding the connection with her emotions, I used a more active approach to help her identify her triggers, reframe her irrational beliefs, challenge either/or thinking, recognize and replace negative self-talk with health-enhancing affirmations and use progressive relaxation techniques.

A Note About Grief

Newly-diagnosed patients often go through a grieving process, and this can be an essential step in coming to terms with their condition and moving forward with treatment and lifestyle adjustments. When they grieve, they are beginning the process of accepting that a change is occurring in their life. Regardless of the diagnosis, accepting that life is going to be different in some way, and that these changes are out of their hands, is an important step forward. For many newly-diagnosed patients, their diagnosis causes them to take a look at one or more of their basic beliefs about life and to reevaluate them. This may be the first time that they have looked at these beliefs and how they affect their actions and emotional reactions. During this process, assessing a patient’s spiritually, and encouraging them to seek spiritual guidance in whatever way is meaningful to them can be helpful in getting through the grieving process.

Sensitivity to the Influence of Culture and Gender

It is also important for healthcare professionals to be aware of the influence of culture and gender. Cultural background can influence how patients interact with the medical establishment, how they experience and express emotions, and their willingness to accept mental health intervention. Gender can present further complications in expressing emotions around illness as well as in getting informed. In Western culture, women tend traditionally to be more active medical consumers than are men.

Working with the Healthcare Team

The healthcare professionals that are working with newly-diagnosed patients can greatly benefit from the ability to understand and recognize how patients are reacting to their diagnosis, and psychotherapists can play an important role in consulting with them. Understanding whether a patient is having a flight, freeze, or fight response, for example, will guide healthcare professionals in gauging their readiness to receive information, so that it is presented in a manner in which patients will most likely be receptive. Those in flight reaction may need some additional emotional support while those in freeze reaction may need some coaching in interpreting what they read and hear with a sense of optimism. Fighters may ask a lot of questions for which the team needs to be prepared. And going forward with treatment and recovery, patients who don’t become fighters may continuously erect barriers to compliance and life management.

I often work directly with physicians and, depending on the wishes and permission of the patient, will contact the healthcare team to share information and, as needed, to advocate for my patient. Where possible, maintaining open communications with healthcare providers, and offering to support them during especially difficult times during and after treatment, can be invaluable to the patient. Many healthcare providers also recognize the emotional component as key to enhancing recovery and ongoing compliance and are happy for the support.

Offering the healthcare team an understanding the patient’s particular reaction style can help them tailor their approach in ways that leverage the patient’s strengths. We can specifically give the team advice about how best to:

  • Present information on the condition and its treatment
  • Coach patients through the treatment process
  • Make recommendations on lifestyle management
  • Encourage patients to seek support with activities of daily living
  • Monitor ongoing compliance

Preparing for the Road Ahead

Finally, I always tell my clients: You are not a diagnosis. Your diagnosis is only part of who you are. Remind yourself every day that you are a fascinating, multi-dimensional creature with a past, a present, and a future that belongs to you and to you alone. Embrace life and your potential to live your life, with all of its triumphs, set-backs, surprises, and detours. Now, let’s get prepared for the road ahead!